Paroxysmal Nocturnal Hemoglobinuria (PNH)
PNH, or Paroxysmal nocturnal hemoglobinuria Paroxysmal nocturnal hemog
Please make a donation to the Aplastic Anemia and MDS International Foundation.
Donate Today
PNH, or Paroxysmal nocturnal hemoglobinuria Paroxysmal nocturnal hemog
Aplastic anemia Aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood c
Aplastic anemia Aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood c
MDS classification systems divide MDS into subtypes based on the results of blood and bone marrow bone marrow: The soft, spongy tissue inside most bones.
A correct diagnosis is essential to getting the right treatment - a complicated problem for a rare disease for which there is no single test. Because doctors see so few MDS cases, they need to conduct a variety of tests to determine what the patient’s disease is and is not.
To understand what is causing your symptoms and low blood counts, your doctor will start with a detailed medical history. Your doctor may ask:
The symptoms of MDS, also known as Myelodysplastic Syndromes Myelodysplastic Syndromes: (my-eh-lo-diss-PLASS-ti
MDS, or Myelodysplastic syndromes Myelodysplastic syndromes: (my-eh-lo-diss-PLASS-tik SIN-dromez) A group of di
Doctors can’t identify a specific cause in 9 out of 10 MDS cases. These are called “de novo” MDS, meaning arising without a known cause.
It was August 2011, two days into the fall semester of my junior year of college at Penn State. I was excited to be surrounded by friends as we ran a booth for a fall fair when I got a phone call from a nurse at my primary care doctor’s office. She sounded concerned, so I quickly tried to weave my way out of the crowd to a quieter environment when I heard her say “are you bleeding right now?!” How does one respond to that kind of question? I replied, “No. And why?” She told me, “You’re extremely anemic.