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AAMDSIF Podcast for Patients: Dr. Gustavo Rivero discusses Low-Risk MDS
Dr. Gustavo Rivero describes strategies for the management of Low-Risk MDS, or Myelodysplastic Syndromes. He details supportive care for these patients, including transfusions and iron overload therapies.
Dr. Vu Duong explains High-Risk and Low-Risk MDS
Dr Vu Duong explains risk classifications for MDS. He dives into IPSS and IPSS-R scores, focused on helping patients to understand the meanings of high-risk and low-risk MDS.
MDS to AML, treatment and options with Dr. Tiffany Tanaka, UC San Diego
Dr. Tiffany Tanaka from the University of California, San Diego explains the development of High-Risk MDS into AML. She talks about new diagnostic and treatment regimens for these patients.
Eliot thrives after transplant and clinical trial for MDS - AML
Eliot's disease of Myelodysplastic Syndromes with IDH1 and IDH2 mutations developed quickly. His son was his donor for the haploidentical bone marrow transplant, and now he thrives thanks to a clinical trial drug that keeps the Acute Myeloid Leukemia and MDS in remission. Listen to his story now.
Dr. Ehab Atallah Explains Transplant for MDS in Older Patients
Dr. Ehab Atallah discusses the good news about treatment for MDS, Myelodysplastic Syndromes, for patients ages 65 and older.
Leigh Ann and her son are both successful transplant patients after MDS!
10 years after diagnosis, Leigh Ann needed a bone marrow transplant. Five years later, her son did, too! Listen to her story of different family members having the same rare disease, Myelodysplastic Syndromes, here.
How a Delay in Treatment nearly Cost her Life - Veronica's Story
Person's Name:
Veronica Ruiz
Veronica learned that delaying treatment was not a good idea.
That delay nearly ended her life.
Bone Marrow Disease(s):
Content source:
Ashley and Alayna: A Mother's Story
Person's Name:
Ashley Numbers
September 16 through December 20 will stand out in Ashley’s mind.
Forever.
These are the days she spent in the hospital with her feisty three-year-old, Alayna, for conditioning and bone marrow transplant.
The summer of 2019 was already big with a wedding to plan. The toddler and her baby brother were enjoying everything that small ones do, including riding dirt bikes with Daddy.
Bone Marrow Disease(s):
Content source: