Personalized Search
Displaying 461 - 480 of 1138
In this webinar, Dr. Jayastu Senapati discusses the diagnosis of secondary AML from MDS, treatment options available to patients and symptom management. Questions were asked by the online audience, and Dr. Senapati answered them clearly.
Webinar last updated
.
ASH (American Society for Hematology) recently released new clinical practice guidelines for the diagnosis and management of
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia…
Webinar last updated
.
PLEDGE – Patients’ Long-term Experience on VOYDEYA (Danicopan): Gathering Evidence in the Real-World
The IRB-approved observational Phase IV PLEDGE study is set-up to collect real-world data on adult patients with
Paroxysmal Nocturnal Hemoglobinuria
Paroxysmal Nocturnal Hemoglobinuria:
(par-uk-SIZ-muhl nok-TURN-uhl hee-muh-gloe-buh-NYOOR-ee-uh) A rare and serious blood disease that causes red blood cells to break apart. Paroxysmal means sudden and irregular. Nocturnal means at night.…
Clinical Trial last updated
.
In 2009, Daniel had a good job in accounting in Sydney, Australia. He had a structured, organized, healthy lifestyle. He had a devoted partner (whom he later married) and was studying for the Chartered Accountancy qualification. He rode his bike to work and played soccer. He was planning a good life ahead.One day at the office, the receptionist pinched his arm. The next day, he saw a huge welt in…
Patient Chronicle last updated
.
The 2025 Patient and Family Conference in Rockville, MD was held on March 8, 2025.Below are links to conference session recordings in full.
Conference Event last updated
.
In this recording, Dr. Catherine Lai discusses MDS and how patients can also be diagnosed with MPN's. Her presentation discusses the treatment options available to patients and resources.
Webinar last updated
.
In this recording, Dr. Bhumika Patel discusses what is new in PNH and current treatment options available to patients.
Webinar last updated
.
Debra shares both her experiences and how she maintained hope with
Aplastic Anemia
Aplastic Anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is…
Webinar last updated
.
In this recording, Dr. Ball Brian discusses low risk MDS and current treatment options.
Webinar last updated
.
In this recording, Dr. Phillip Scheinberg discusses
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most…
and…
Webinar last updated
.
In this recording, Dr. Philip Scheinberg discusses PNH complications that can impact a patient - extravascular
hemolysis
hemolysis:
(hi-MOL-uh-suss) The destruction of red blood cells.
, intravascular hemolysis,
Budd-Chiari Syndrome
Budd-Chiari Syndrome:
(bud-kee-AR-ee SIN-drome) A blood clot in the major vein that leaves the liver (hepatic vein). The liver and the spleen may…
Webinar last updated
.
In this recording, Dr. Parveen Shiraz discusses transplant for MDS and potentials complications such as GVHD and treatment options.
Webinar last updated
.
In this webinar, Dr. Amy DeZern discusses the latest in transplantation and GVHD for
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red…
Webinar last updated
.
In January 2025, life felt full of momentum. My husband and I had just moved from Colorado to Tennessee to be closer to family. I was beginning my real estate career, we had just bought our first house, and we had our two precious daughters, just 2 years and 10 months old.I was working hard to get back in shape postpartum, but something felt off. I was getting weaker, more out of breath when I…
Patient Chronicle last updated
.
Dr. Salman Fazal will gives a brief AML overview and then answers questions from participants. The question and answer session is recorded here.
Webinar last updated
.
In this webinar, Dr. Gail Roboz discusses the Molecular
International Prognostic Scoring System
International Prognostic Scoring System:
A system that turns patient data into a score. The score tells how quickly a myelodysplastic syndrome (MDS) case is progressing and helps predict what may happen with the patient's MDS in the future. Also called IPSS.
(IPSS-M) which is a newly…
Webinar last updated
.
PNH patients discuss their PNH journey by sharing their stories and answering questions from other PNH patients.
Webinar last updated
.
In this webinar, Dr. Lourdes Mendez discusses research most relevant to patients reported over the past year on the biology and treatment on MDS and secondary AML. These studies were presented at the American Society of Hematology (ASH) 2022 meeting. Research findings are explained along with the potential impact of this research on understanding and treating MDS and AML. This is an…
Webinar last updated
.
Dr. Caroline Piatek defined PNH, how PNH is diagnosed, the available treatment options, and side effect management. She also answered questions about PNH (Paroxysmal Nocturnal
Hemoglobinuria
Hemoglobinuria:
(hee-muh-gloe-buh-NYOOR-ee-uh) The presence of hemoglobin in the urine.
.)
Webinar last updated
.