Personalized Search
Displaying 341 - 360 of 1138
Each year, approximately 1 in every 1 million infants is diagnosed with pediatric
myelodysplastic syndromes
myelodysplastic syndromes:
(my-eh-lo-diss-PLASS-tik SIN-dromez) A group of disorders where the bone marrow does not work well, and the bone marrow cells fail to make enough healthy blood cells. Myelo refers to the bone marrow. Dysplastic means abnormal growth or development.…
Article last updated
.
Eltrombopag
Eltrombopag:
What are the possible side effects of eltrombopag (Promacta)?
Get emergency medical help if you have any of these signs of an allergic reaction: hives; difficult breathing; swelling of your face, lips, tongue, or throat.
Stop using eltrombopag and call your doctor at once if you have:
…
, an FDA-approved non-peptidyl thrombopoietin receptor agonist is…
Article last updated
.
The mRNA COVID-19 Vaccines Are Safe and Effective for Most Patients with Cancer
For most patients with cancer, the mRNA COVID-19 vaccines are safe and effective. This article explains the results of the first study that evaluated the safety and effectiveness of the mRNA vaccines in patients with solid cancers, such as lung, breast, or prostate cancer.
November 2021 – Lung Cancer
Laura Morgan
The…
Article last updated
.
Myelodysplastic syndromes
Myelodysplastic syndromes:
(my-eh-lo-diss-PLASS-tik SIN-dromez) A group of disorders where the bone marrow does not work well, and the bone marrow cells fail to make enough healthy blood cells. Myelo refers to the bone marrow. Dysplastic means abnormal growth or development. People with MDS have low blood cell count for at…
(MDS) and
neutropenia…
Article last updated
.
Drs. Xiaoyi Chen and Payal Sojitra discuss diagnosis approaches, key differences and treatment considerations for Lower-Risk MDS, Higher-Risk MDS, and MDS/MPN Overlap.
The session was recorded live at the 2026 AAMDSIF New Brunswick Patient and Family Conference.
Webinar last updated
.
Dr. Jamie Koprvinikar discusses the signs and symptoms of PNH, current diagnostic approaches, available treatment options, and the latest advances in patient care. This session was recorded at the 2026 AAMDSIF New Brunswick Patient and Family Conference.
Webinar last updated
.
Dr. Virian Serei discusses how
bone marrow failure
bone marrow failure:
A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Bone marrow failure can be acquired (begin any time in life) or can be…
is diagnosed,…
Webinar last updated
.
Dr. Srinivasa Samikommu discusses
bone marrow transplant
bone marrow transplant:
A bone marrow transplant (BMT) is also called a stem cell transplant (SCT) or hematopoietic stem cell transplant (HSCT).The procedure replaces unhealthy blood-forming stem cells with healthy ones and offers some patients the possibility of a cure. But for many patients, a BMT is not an option due…
, the…
Webinar last updated
.
AAMDSIF receives support from corporate partners who invest in advancing our mission. Thanks to their financial contributions, we are able to provide answers, support, and hope to patients, their families, and healthcare professionals entrusted with providing quality care.
AAMDSIF Corporate Partners provide financial and in-kind support of programming through sponsorships and grants.…
Basic page last updated
.
During this webinar, Drs. Uma Borate and Alice Mims will discuss lower risk MDS, higher risk MDS and MDS/MPN overlap. They will explore key disease characteristics, current treatment approaches, and considerations for managing these complex myeloid neoplasms. After the presentation, there will be a Q & A session. Please submit your questions in advance to help@aamds.org.
Webinar last updated
.
The Global PNH Patient Registry is a collaborative effort between the
Aplastic Anemia
Aplastic Anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when…
Basic page last updated
.
During this webinar, Dr. Filippo Milano will discuss
cord blood transplant
cord blood transplant:
A procedure where umbillical cord stem cells are given to the patient through an intravenous (IV) line. Stem cells are collected from an umbilical cord right after the birth of a baby. They are kept frozen until needed. In time, donated stem cells given to the patient begin making new,…
Webinar last updated
.
Patient panel discussions are a chance to meet inspiring people who are living with PNH . Hear firsthand perspectives on the patient journey, challenges, treatment experiences, and what matters most to those living with PNH. Please send your questions in advance to help@aamds.org.
Webinar last updated
.
My journey with this illness started at just around about two years old. I was told by my family that I had gotten sick with pneumonia and my immune system just worsened to the point of
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets.…
Patient Chronicle last updated
.
In this webinar, Sondos Khattab, Registered Dietitian, will discuss practical tips for managing treatment-related challenges, food safety, and making informed nutrition choices to support overall health. Questions can be submitted in advance at help@aamds.org.
Webinar last updated
.
Dr. Rachel Salit provides an overview of transplantation for myeloproliferative neoplasms (MPN), including Myelofibrosis, when a transplant may be recommended, the transplant process, potential risks and benefits, recovery, and long-term follow-up.
Webinar last updated
.
During this webinar, Dr. Sumithira Vasu will discuss the diagnosis, treatment, and impact of transplant-associated thrombotic microangiopathy (TA-TMA). After the presentation, there will be a question-and-answer session. Questions can be submitted in advance to help@aamds.org.
Webinar last updated
.
Dr. Naveed Ali provides an overview of transplantation for
myelodysplastic syndromes
myelodysplastic syndromes:
(my-eh-lo-diss-PLASS-tik SIN-dromez) A group of disorders where the bone marrow does not work well, and the bone marrow cells fail to make enough healthy blood cells. Myelo refers to the bone marrow. Dysplastic means abnormal growth or development. People with MDS have low…
Webinar last updated
.
Dr. Sioban Keel discusses inherited disorders, genetic testing, how these disorders are diagnosed, and their impact on treatment decisions and care.
Webinar last updated
.
Dr. Anna Halpern discusses the signs and symptoms of
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most…
,…
Webinar last updated
.