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Learn about recent research and clinical advances for treating Low-Risk MDS, or
Myelodysplastic Syndromes
Myelodysplastic Syndromes:
(my-eh-lo-diss-PLASS-tik SIN-dromez) A group of disorders where the bone marrow does not work well, and the bone marrow cells fail to make enough healthy blood cells. Myelo refers to the bone marrow. Dysplastic means abnormal growth or development.…
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Erin Kopp explains strategies for dealing with pain and other issues for patients with
bone marrow failure
bone marrow failure:
A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Bone marrow failure can be acquired…
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Dr. June-Wha Rhee describes the potential for cardiovascular complications after HCT, or hematopoietic stem cell transplantation, in this session from the 2024 Los Angeles Patient and Family Conference.
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Discover the most recent treatments and therapies available for High-Risk MDS, or
Myelodysplastic Syndromes
Myelodysplastic Syndromes:
(my-eh-lo-diss-PLASS-tik SIN-dromez) A group of disorders where the bone marrow does not work well, and the bone marrow cells fail to make enough healthy blood cells. Myelo refers to the bone marrow. Dysplastic means abnormal growth or development.…
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Dr. Ryotaro Nakamura explains the entire process for
bone marrow
bone marrow:
The soft, spongy tissue inside most bones. Blood cells are formed in the bone marrow.
transplantation in this recorded session from the 2024 Los Angeles Patient and Family Conference. Learn the potential ways transplants can help patients with
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-…
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Brandi was hooked on acting from the time she was three and played a munchkin in the Wizard of Oz. She eventually sidelined her first love to study political science at the University of Northern Alabama.
In 2011, she made history there as the first black Miss UNA. Her next coveted role was as a college intern on Capitol Hill in Washington, D.C. But by far, the hardest part she ever had to…
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In this recording, Dr. Srinivasa Sanikommu discusses complications that can occur during a PNH patient's lifetime and the treatment options available to patients.
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In this recording, Dr. Lacey Williams discusses the diagnosis of MDS/MPN overlap and the treatment options available to patients.
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Shauna describes her journey with MDS, or Myelodsplastic Syndromes, in this recorded session from the 2025 Chapel Hill Patient and Family Conference.
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In this webinar, Dr. Jose Martinez discuesse the diagnosis of Low Risk MDS and treatment options available to patients.
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In this recording, Dr. Brandi Reeves discusses the diagnosis of
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low…
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In this webinar, Dr. Srinivasa Sanikommu discusses the diagnosis of PNH and current treatments available to patients.
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In this webinar, Dr. Corey Cutler discusses advances in transplant and treating GVHD, or Graft Versus Host Disease.
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In this webinar, Dr. Srinivasa Sanikommu discusses the management of PNH and complications experienced by patients.
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In this recording, Dr. Andrew Brunner discusses the diagnosis of low risk MDS overlap and the treatment options available to patients.
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In this recording, Dr. Richard Stone discusses the diagnosis of MDS/MPN overlap and the treatment options available to patients.
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In this recording, Dr. Jacqueline Garcia discusses the diagnosis of high risk MDS and the treatment options available to patients.
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In this recording, Dr. Nikolai Podoltsev discusses the diagnosis of
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is…
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What do you go through to treat of
Aplastic Anemia
Aplastic Anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most…
? What is life like…
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Learn from Dr. Bart Scott in this recorded session. Find out all the symptoms and science for a diagnosis of PNH, or
Paroxysmal Nocturnal Hemoglobinuria
Paroxysmal Nocturnal Hemoglobinuria:
(par-uk-SIZ-muhl nok-TURN-uhl hee-muh-gloe-buh-NYOOR-ee-uh) A rare and serious blood disease that causes red blood cells to break apart. Paroxysmal means sudden and irregular. Nocturnal means…
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