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The Global PNH Patient Registry is a collaborative effort between the
Aplastic Anemia
Aplastic Anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when…
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During this webinar, Dr. Filippo Milano will discuss
cord blood transplant
cord blood transplant:
A procedure where umbillical cord stem cells are given to the patient through an intravenous (IV) line. Stem cells are collected from an umbilical cord right after the birth of a baby. They are kept frozen until needed. In time, donated stem cells given to the patient begin making new,…
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Patient panel discussions are a chance to meet inspiring people who are living with PNH . Hear firsthand perspectives on the patient journey, challenges, treatment experiences, and what matters most to those living with PNH. Please send your questions in advance to help@aamds.org.
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My journey with this illness started at just around about two years old. I was told by my family that I had gotten sick with pneumonia and my immune system just worsened to the point of
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets.…
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In this webinar, Sondos Khattab, Registered Dietitian, will discuss practical tips for managing treatment-related challenges, food safety, and making informed nutrition choices to support overall health. Questions can be submitted in advance at help@aamds.org.
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Dr. Rachel Salit provides an overview of transplantation for myeloproliferative neoplasms (MPN), including Myelofibrosis, when a transplant may be recommended, the transplant process, potential risks and benefits, recovery, and long-term follow-up.
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During this webinar, Dr. Sumithira Vasu will discuss the diagnosis, treatment, and impact of transplant-associated thrombotic microangiopathy (TA-TMA). After the presentation, there will be a question-and-answer session. Questions can be submitted in advance to help@aamds.org.
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Dr. Naveed Ali provides an overview of transplantation for
myelodysplastic syndromes
myelodysplastic syndromes:
(my-eh-lo-diss-PLASS-tik SIN-dromez) A group of disorders where the bone marrow does not work well, and the bone marrow cells fail to make enough healthy blood cells. Myelo refers to the bone marrow. Dysplastic means abnormal growth or development. People with MDS have low…
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Dr. Sioban Keel discusses inherited disorders, genetic testing, how these disorders are diagnosed, and their impact on treatment decisions and care.
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Dr. Sioban Keel discusses the signs and symptoms of
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most…
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Dr. Anna Halpern discusses the signs and symptoms of
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most…
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Dr. Bart Scott provides an overview of
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most…
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In this webinar, Dr. Lacey Williams discusses the diagnosis of High Risk MDS and treatment options available to patients.
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In this webinar, Dr. Akriti Jain discusses research most relevant to patients reported over the past year on the biology and treatment of Lower Risk MDS. These studies were presented at the American Society of Hematology (ASH) 2025 meeting, and their findings will be explained along with the potential impact of this research on understanding and treating Lower Risk MDS. This is an advanced…
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Dr. Anna Halpern discusses how leukemic transformation is identified, what it means for prognosis, and how patients and their healthcare teams can navigate treatment decisions.
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Tregzi is the first regulatory T (Treg) cell-based immunotherapy for improving chronic
graft-versus-host disease (GVHD)
graft-versus-host disease (GVHD):
Also called GVHD, it is a common complication of bone marrow/stem cell transplantation. It is caused when the donor's immune cells, now in the patient, begin to see the the patient's body as foreign and mount an immune response. GVHD…
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Omisirge is the first cellular therapy approved to treat patients with severe
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell…
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Omisirge is the first cellular therapy approved to treat patients with severe
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell…
Drug last updated
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In this webinar, Dr. Akriti Jain will explains the latest research presented the American Society of Hematology meeting on MDS and secondary AML. This is an advanced presentation.
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