AAMDSIF hosts Patient and Family Conferences around the United States each year. Conferences are free to attend and include presentations by the leading medical experts in rare blood cancers and bone marrow failure diseases. It is also an incredible and important opportunity for patients to connect with one another and share support, answers and hope.
2024 Conferences - Registration Open
- April 13, 2024 Los Angeles, CA, in partnership with City of Hope (Duarte, CA): Patient and Family Conference - Register Here
- June 22, 2024 Seattle, WA, in partnership with Fred Hutchinson Cancer Center: Patient and Family Conference - Register Here
- July 19-20, 2024 Philadelphia, PA, in partnership with University of Pennsylvania and Children's Hospital of Pennsylvania: Patient and Family Conference including Special Programming for Parents and Kids - Register Here
- September 14, 2024 Chicago, IL, in partnership with University of Chicago: Patient and Family Conference - Register Here
- October 26, 2024 Tampa, FL in partnership with Moffitt Cancer Center: Patient and Family Conference - Registration Opening Soon
2023 Conferences
- April 15, 2023 Omaha, NE, Patient and Family Hybrid Conference - Partnership with University of NE Medical Center - Find Session Recordings Here
- July 15, 2023 Salt Lake City, UT Patient and Family Hybrid Conference - Partnership with Huntsman Cancer Institute and Primary Children's Hospital - Find Session Recordings Here
- September 23, 2023 Phoenix, AZ, Rochester, MN and Jacksonville, FL Patient and Family Hybrid Conference - Partnership with Mayo Clinic - Register Here!
- October 14, 2023 New Haven, CT, Patient and Family Hybrid Conference - Partnership with Yale Cancer Center - Recordings Coming Soon
- November 4, 2023 Dallas, TX, Patient and Family Hybrid Conference - Partnership with University of TX Southwestern - Recordings Coming Soon
Thank you to our 2023 conference sponsors: Alexion, Amgen, Apellis, Biocryst, Bristol Myers Squibb, Genentech, Novartis, Regeneron, Servier, and Taiho.
2022 Conferences
Please find the recordings or presentations for each of the 2022 conferences below.
- March 26, 2022: San Antonio, TX, Patient and Family Virtual Conference.
Find Recordings Here
* Partnership with Mays Cancer Center at UT Health San Antonio MD Anderson - June 18, 2022: 9th Seattle, WA, Patient and Family Hybrid Conference. Find Conference Materials Here
* Partnership with Fred Hutchinson Cancer Research Center - July 23, 2022: Memphis, TN, Patient and Family Hybrid Conference. Find Recordings Here * Partnership with The University of Tennessee Health Science Center
- September 10: Buffalo, NY, Patient and Family Hybrid Conference. Find Recordings Here
- * Partnership with Roswell Park Comprehensive Cancer Center
- NOTE Change of Date: October 29, 2022: Miami, FL, Patient and Family Hybrid Conference. Find Recordings Here *Partnership with Sylvester Comprehensive Cancer Center - University of Miami
If you have questions regarding our conferences or registration, please call our conference information line at 301-279-7202 x 128 or email us at conference@aamds.org
Access Presentation Materials from Past Conferences
Who should attend?
- Aplastic anemia, PNH, MDS and AML patients
- Those who are newly diagnosed or currently in treatment, as well as long-term survivors
- Caregivers, family members or friends
- Nurses and other healthcare professionals are also welcome
Why should you attend?
- Gain unprecedented access to top experts
- Get your questions answered
- Return home a wiser and better-equipped self-advocate
- Meet those who genuinely understand what you are going through
- Build a strong and supportive community
- Leave with a sense of optimism and hope for the future
- Mark your calendars now. Advance registration is always recommended.
What to Expect from AAMDSIF Conferences:
- An in-depth review of the current thinking on aplastic anemia, PNH, MDS and AML.
- Practical steps you can take to become an even stronger advocate for your best care and treatment.
- Practical strategies for improving your health and well-being in spite of your illness.
- Meet other patients and family members, join a Virtual Support Group in your area and discover our Peer Support Network.
- Learn how AAMDSIF can help you with this life-altering journey.