Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

Treatment and Management of Aplastic Anemia and PNH Graphic: 2026 webinar for Treatment and Management of Aplastic Anemia and P-N-H
Is a Transplant Right for me? - Making Decisions Graphic for 2026 Webinar: Is a Transplant Right for Me - Making Decisions

Watch Past Webinar Recordings

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Topic(s)
Bone Marrow Transplant
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Presenter(s)
Ryotaro Nakamura, MD
Dr. Ryotaro Nakamura explains the entire process for bone marrow transplantation in this recorded session from the 2024 Los Angeles Patient and Family Conference. Learn the potential ways transplants can help patients with aplastic anemia or MDS.

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Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Patient Ruth Cuadra describes her journey facing the challenges of aplastic anemia and MDS in this recording from the 2024 Los Angeles Patient and Family Conference.

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Topic(s)
Bone Marrow Transplant
Presenter(s)
Karamjeet Singh Sandhu, MD
Dr. Karamjeet Singh explains the condition of Chronic GVHD, or Graft Versus Host Disease in this recorded session from the 2024 Los Angeles Patient and Family Conference.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Zahra Pakbaz, MD
Discover the most recent treatments and therapies available for High-Risk MDS, or Myelodysplastic Syndromes, in this recorded session featuring Dr. Zahra Pakbaz.

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Topic(s)
Managing Your Treatment
Presenter(s)
Erin Kopp, DNP
Erin Kopp explains strategies for dealing with pain and other issues for patients with bone marrow failure diseases in this session from the 2024 Los Angeles Patient and Family Conference.

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Topic(s)
Bone Marrow Transplant
Presenter(s)
June-Wha Rhee, MD
Dr. June-Wha Rhee describes the potential for cardiovascular complications after HCT, or hematopoietic stem cell transplantation, in this session from the 2024 Los Angeles Patient and Family Conference.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Brian Ball, MD
Learn about recent research and clinical advances for treating Low-Risk MDS, or Myelodysplastic Syndromes in this session from Dr. Brain Ball.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
In this webinar, Dr. Akriti Jain will explains the latest research presented the American Society of Hematology meeting on MDS and secondary AML. This is an advanced presentation.

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Topic(s)
Myelodysplastic Syndromes (MDS)
In this webinar, patients diagnosed with MDS discuss their patient journey and share their personal experiences.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
In this webinar, patients diagnosed with PNH discuss their patient journey and share their personal experiences.

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Topic(s)
Aplastic Anemia
In this webinar, patients diagnosed with Aplastic Anemia discuss their patient journey and share their personal experiences.

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Topic(s)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Susan Kirk, MSPAS, PA-C
In this webinar, Susan Kirk discusses the latest advances in treating pediatric aplastic anemia.

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Topic(s)
Bone Marrow Transplant
Presenter(s)
Annie Im, MD
In this webinar, Dr. Annie Im presents the latest research and treatment of GVHD.

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Topic(s)
Myelodysplastic Syndromes (MDS)
In this webinar, Jennie Vagher, certified genetic counselor, discusses hereditary or genetic predisposition to MDS. Jennie is an expert in rare cancer predisposition syndromes.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Taha Bat, MD
Dr. Taha Bat explains extravascular hemolysis, focusing on PNH (Paroxysmal Nocturnal Hemoglobinuria). This session is important for anyone affected by PNH.

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Topic(s)
Living Well with Bone Marrow Failure
Presenter(s)
Nathan R. Handley, MD
In this webinar, Dr. Nathan Handley discusses what is integrative medicine and how it can be part of your treatment plan. He answers audience questions in the recording.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Kelly Bolton, MD, PhD
Eytan Stein, MD
In this webinar, Drs. Kelly Bolton and Eytan Stein discuss CCUS (clonal cytopenia of undetermined significance) and the connection to MDS.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Bone Marrow Transplant
Aplastic Anemia
COVID-19
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Managing Your Treatment
Acute Myeloid Leukemia (AML)
In this webinar, Jennifer Lotter explains medical terms most commonly used with a diagnosis of aplastic anemia, MDS, and PNH.

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Topic(s)
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Jane Meier Hamilton, RN, MSN
In this webinar, Jane Hamilton discusses how and why it is important for caregivers to practice self care. The entire interactive session was recorded.

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Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Bone Marrow Transplant
Aplastic Anemia
COVID-19
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Managing Your Treatment
Acute Myeloid Leukemia (AML)
Presenter(s)
Swapna Thota, MD
In this webinar, Dr. Thota will discuss what caregivers can expect when their loved one is diagnosed- symptoms and side effects of disease and treatments.
Displaying 81 - 100 of 209

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