Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

PNH Patient Panel 2026 Webinar: P-N-H Patient Panel
The MDS Spectrum - Lower Risk MDS, Higher Risk MDS and MDS/MPN Overlap 2026 Webinar: The MDS Spectrum - Lower Risk M-D-S, Higher Risk M-D-S and M-D-S/M-P-N Overlap

Watch Past Webinar Recordings

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Topic(s)
Aplastic Anemia
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
In this webinar, Sondos Khattab, Registered Dietitian, will discuss practical tips for managing treatment-related challenges, food safety, and making informed nutrition choices to support overall health. Questions can be submitted in advance at help@aamds.org.

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Sumithira Vasu, MD
During this webinar, Dr. Sumithira Vasu will discuss the diagnosis, treatment, and impact of transplant-associated thrombotic microangiopathy (TA-TMA). After the presentation, there will be a question-and-answer session. Questions can be submitted in advance to help@aamds.org.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Bart Scott, MD

Dr. Bart Scott discusses the signs and symptoms of PNH, current diagnostic approaches, available treatment options, and the latest advances in patient care.

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Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Bart Scott, MD

Dr. Bart Scott provides an overview of aplastic anemia, myelodysplastic syndromes (MDS), myeloproliferative neoplasms (MPN), and paroxysmal nocturnal hemoglobinuria (PNH). He explains the diagnostic tests and criteria used to make an accurate diagnosis.

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Topic(s)
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Taha Bat, MD
In this webinar, Dr. Taha Bat discusses research most relevant to patients reported over the past year on the biology and treatment for Aplastic Anemia and PNH. The studies were presented at the American Society of Hematology (ASH) 2025 meeting. These findings will be explained…

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Presenter(s)
Phil Scheinberg, MD
In this webinar, Dr. Phillip Scheinberg will discuss the latest research presented at EHA about aplastic anemia and PNH. This is an advanced presentation. There will be a Q & A session and questions can be submitted in advance to help@aamds.org.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Srinivasa Reddy Sanikommu, MD
In this recording, Dr. Srinivasa Sanikommu discusses complications that can occur during a PNH patient's lifetime and the treatment options available to patients.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Srinivasa Reddy Sanikommu, MD
In this webinar, Dr. Srinivasa Sanikommu discusses the management of PNH and complications experienced by patients.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Srinivasa Reddy Sanikommu, MD
In this webinar, Dr. Srinivasa Sanikommu discusses the diagnosis of PNH and current treatments available to patients.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
In this webinar, Kylie Chen, Registered Dietitian, discusses common nutrition challenges and evidence-based strategies to improve nutritional status and learn easy nutrition swaps.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Bart Scott, MD
Bart Scott, MD, explains various treatments for PNH, or Paroxysmal Nocturnal Hemoglobinuria. He discusses possible side effects and treatment methods.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Bart Scott, MD
Learn from Dr. Bart Scott in this recorded session. Find out all the symptoms and science for a diagnosis of PNH, or Paroxysmal Nocturnal Hemoglobinuria to answer your most pressing questions.

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Topic(s)
Aplastic Anemia
Bone Marrow Transplant
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Judith Shizuru, MD
Dr. Judith Shizuru explains how Transplantation can be used to treat Aplastic Anemia and PNH. She discusses how GVHD, or Graft VS Host Disease, can occur after transplant as well.

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Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Jessie Alexander, MD
Rajni Agarwal, MD
Which bone marrow failure diseases can be inherited? Why? How? Find the answers to these questions and more in this recording from the 2025 San Francisco Bay Area Patient and Family Conference.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Satheesh Chonat, MD
Dr. Satheesh Chonat explains the presentation of PNH, or Paroxysmal Nocturnal Hemoglobinuria, in children as well as its treatment.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Srinivasa Reddy Sanikommu, MD
In this recording, Dr. Srinivasa Sanikommu discusses current thinking on PNH and therapies that are available to patients. Recording includes the question-and-answer session.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Judy talks about her PNH journey from diagnosis, treatment decisions and moving forward.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Srinivasa Reddy Sanikommu, MD
In this recording, Dr. Srinivasa Sanikommu discusses PNH complications that can impact a patient - extravascular hemolysis, intravascular hemolysis, Budd-Chiari Syndrome and blood clots. Recording includes the question-and-answer session.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Bhumika Patel, MD
In this recording, Dr. Bhumika Patel discusses what is new in PNH and current treatment options available to patients.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Phil Scheinberg, MD
In this recording, Dr. Philip Scheinberg discusses PNH complications that can impact a patient - extravascular hemolysis, intravascular hemolysis, Budd-Chiari Syndrome and blood clots.
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