Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

PNH Patient Panel 2026 Webinar: P-N-H Patient Panel
The MDS Spectrum - Lower Risk MDS, Higher Risk MDS and MDS/MPN Overlap 2026 Webinar: The MDS Spectrum - Lower Risk M-D-S, Higher Risk M-D-S and M-D-S/M-P-N Overlap

Watch Past Webinar Recordings

Thumbnail for video Watch Now

Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Presenter(s)
Taha Bat, MD
In this webinar, Dr. Taha Bat discusses research most relevant to patients reported over the past year on the biology and treatment on Aplastic Anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2024 meeting and their findings will be…

Thumbnail for video Watch Now

Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Jamile M. Shammo, MD, FASCP, FACP
In this webinar, Dr. Jamile Shammo discusses the latest in PNH research and treatments.

Thumbnail for video Watch Now

Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
In this webinar, Doris Piccinin, registered dietician, will discuss how diet can play a role in living well with a bone marrow failure disease. You can submit questions in advance by emailing help@aamds.org.

Thumbnail for video Watch Now

Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Gloria F. Gerber, MD, explains the diagnosis and treatment of PNH, or Paroxysmal Nocturnal Hemoglobinuria. Watch this session to understand what happens to patients who develop PNH, and the options for treatment of this bone marrow failure disease.

Thumbnail for video Watch Now

Topic(s)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Ellen Kalinosky describes her turbulent journey through multiple bone marrow failure diseases in this recording from the 2024 Philadelphia Patient and Family Conference.

Thumbnail for video Watch Now

Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Anna Halpern, MD
Dr. Anna Halpern explains how bone marrow failure diseases can advance into certain leukemias in this session from the 2024 Seattle Patient and Family Conference.

Thumbnail for video Watch Now

Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Bart Scott, MD
Dr. Bart Scott explains the diagnosis bone marrow failure diseases in this session from the 2024 Patient and Family Conference in Seattle, WA.

Thumbnail for video Watch Now

Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Sioban Keel, MD
Which bone marrow failure conditions can be inherited? What is the likelihood of inheriting aplastic anemia, PNH, or MDS? Find out in this session that features Dr. Sioban Keel.

Thumbnail for video Watch Now

Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Presenter(s)
David Dingli, M.D., Ph.D.
In this webinar, Dr. David Dingli presents the latest research presented the American Society of Hematology meeting on Aplastic Anemia and PNH. This is an advanced presentation.

Thumbnail for video Watch Now

Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Paibel Aguayo-Hiraldo, MD
Dr. Paibel Aguayo-Hiraldo, MD, anticipates your questions about inherited bone marrow failure syndromes in this recording from the 2024 Los Angeles Patient and Family Conference.

Thumbnail for video Watch Now

Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
In this webinar, patients diagnosed with PNH discuss their patient journey and share their personal experiences.

Thumbnail for video Watch Now

Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Taha Bat, MD
Dr. Taha Bat explains extravascular hemolysis, focusing on PNH (Paroxysmal Nocturnal Hemoglobinuria). This session is important for anyone affected by PNH.

Thumbnail for video Watch Now

Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Bone Marrow Transplant
Aplastic Anemia
COVID-19
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Managing Your Treatment
Acute Myeloid Leukemia (AML)
In this webinar, Jennifer Lotter explains medical terms most commonly used with a diagnosis of aplastic anemia, MDS, and PNH.

Thumbnail for video Watch Now

Topic(s)
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Jane Meier Hamilton, RN, MSN
In this webinar, Jane Hamilton discusses how and why it is important for caregivers to practice self care. The entire interactive session was recorded.

Thumbnail for video Watch Now

Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Bone Marrow Transplant
Aplastic Anemia
COVID-19
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Managing Your Treatment
Acute Myeloid Leukemia (AML)
Presenter(s)
Swapna Thota, MD
In this webinar, Dr. Thota will discuss what caregivers can expect when their loved one is diagnosed- symptoms and side effects of disease and treatments.

Thumbnail for video Watch Now

Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Dr. Mina Xu discusses the steps involved in developing an accurate diagnosis for bone marrow failure diseases.

Thumbnail for video Watch Now

Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Lisa Barbarotta, MSN, APRN-BC, AOCNS
Lisa Barbarotta describes techniques to help manage low blood counts in this session.

Thumbnail for video Watch Now

Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Dr. Nicolai Podoltsev describes options available for patients with PNH who could choose non-transplant treatments.

Thumbnail for video Watch Now

Topic(s)
Related Bone Marrow Failure Diseases and Malignancies
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Managing Your Treatment
Learn about biosimilars, biosimilar medications, and their use for bone marrow failure disease treatments from Cate Lockhart, MS, PharmD, PhD.

Thumbnail for video Watch Now

Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
PNH patients discuss their PNH journey by sharing their stories and answering questions from other PNH patients.
Displaying 21 - 40 of 72

2026 Patient Education Sponsors

Alexion Logo
Apellis Logo
Gamida Cell Logo
Novartis Logo
Bristol MyersSquibb Logo
Geron Logo
Servier Logo
Regeneron Logo
Taiho Oncology Logo

Website Feedback

Please use this feedback form to report website issues only. For other issues concerning patients and families, please email help@aamds.org or use the Patient and Family Helpline here.

We Recommend

For Patients and Families