Patient and Family Webinars

Rare blood cancer and bone marrow failure diseases are often difficult to diagnose and even harder to explain. AAMDSIF brings international experts to your computer, tablet or smartphone using language that is easy to understand in a convenient one hour format. We have hundreds of webinars available for you to watch at any time you want!

Register for Upcoming Patient Webinars

There are currently no upcoming webinars scheduled.

Watch Past Webinar Recordings

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Topic(s)
Aplastic Anemia
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
In this webinar, Sondos Khattab, Registered Dietitian, will discuss practical tips for managing treatment-related challenges, food safety, and making informed nutrition choices to support overall health. Questions can be submitted in advance at help@aamds.org.

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Sumithira Vasu, MD
During this webinar, Dr. Sumithira Vasu will discuss the diagnosis, treatment, and impact of transplant-associated thrombotic microangiopathy (TA-TMA). After the presentation, there will be a question-and-answer session. Questions can be submitted in advance to help@aamds.org.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Naveed Ali, MD
Dr. Naveed Ali provides an overview of transplantation for myelodysplastic syndromes (MDS), when a transplant may be recommended, the transplant process, potential risks and benefits, recovery, and long-term follow-up.

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Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Bart Scott, MD

Dr. Bart Scott provides an overview of aplastic anemia, myelodysplastic syndromes (MDS), myeloproliferative neoplasms (MPN), and paroxysmal nocturnal hemoglobinuria (PNH). He explains the diagnostic tests and criteria used to make an accurate diagnosis.

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Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Presenter(s)
Sioban Keel, MD
Dr. Sioban Keel discusses inherited disorders, genetic testing, how these disorders are diagnosed, and their impact on treatment decisions and care.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Anna Halpern, MD
Dr. Anna Halpern discusses the signs and symptoms of aplastic anemia, current diagnostic approaches, available treatment options, and the latest advances in patient care.

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Topic(s)
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Anna Halpern, MD

Dr. Anna Halpern discusses how leukemic transformation is identified, what it means for prognosis, and how patients and their healthcare teams can navigate treatment decisions.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Akriti Jain, MD
In this webinar, Dr. Akriti Jain discusses research most relevant to patients reported over the past year on the biology and treatment of Lower Risk MDS. These studies were presented at the American Society of Hematology (ASH) 2025 meeting, and their findings will be explained…

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Topic(s)
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Jayastu Senapati, MBBS, MD, DM
In this webinar, Dr. Jayastu Senapati discusses the diagnosis of secondary AML from MDS, treatment options available to patients and symptom management. Questions were asked by the online audience, and Dr. Senapati answered them clearly.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
In this webinar, Dr. Jan Bewersdorf discusses the latest research presented at EHA and ASCO on MDS and AML. This is an advanced presentation.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Lacey Williams, MD
In this recording, Dr. Lacey Williams discusses the diagnosis of MDS/MPN overlap and the treatment options available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Shauna describes her journey with MDS, or Myelodsplastic Syndromes, in this recorded session from the 2025 Chapel Hill Patient and Family Conference.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Lacey Williams, MD
In this webinar, Dr. Lacey Williams discusses the diagnosis of High Risk MDS and treatment options available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Jose Martinez, MD, PhD
In this webinar, Dr. Jose Martinez discuesse the diagnosis of Low Risk MDS and treatment options available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Jacqueline Garcia, MD
In this recording, Dr. Jacqueline Garcia discusses the diagnosis of high risk MDS and the treatment options available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Andrew Brunner
In this recording, Dr. Andrew Brunner discusses the diagnosis of low risk MDS overlap and the treatment options available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Richard M. Stone, MD
In this recording, Dr. Richard Stone discusses the diagnosis of MDS/MPN overlap and the treatment options available to patients.

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Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Christin DeStefano, MD, FACP
Drew A. Helmer, MD, MS
In this webinar, Drs. Christin Destefano and Drew Helmar discuss the link between military toxic exposure and hematologic malignancies.

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
In this webinar, Kylie Chen, Registered Dietitian, discusses common nutrition challenges and evidence-based strategies to improve nutritional status and learn easy nutrition swaps.

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Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Jessie Alexander, MD
Rajni Agarwal, MD
Which bone marrow failure diseases can be inherited? Why? How? Find the answers to these questions and more in this recording from the 2025 San Francisco Bay Area Patient and Family Conference.

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