Non Transplant Patient Card
Emergency health information card for patients who have not received a transplant.
treatment
Instructions
Not all healthcare professionals or emergency responders will understand your rare diagnosis and unique needs. AAMDSIF has created an emergency health information card that communicates to others what they need to know…
10th International Bone Marrow Failure Disease Scientific Symposium
Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
The 10th International Bone Marrow Failure Disease Scientific Symposium will convene physicians, laboratory researchers and clinical investigators to discuss current areas of consensus and controversy, share recent research results, and clarify promising directions for…
EHA and ASCO 2021 - Aplastic Anemia and PNH for Patients
This publication offers summaries of selected abstracts presented at the 2021 Meetings of the European Hematology Association (EHA) and the American Society of Clinical Oncology (ASCO). It provides new and updated…
ASH 2021 MDS and AML - for Patients
This publication offers summaries of selected abstracts presented at the December 2021 Meeting of the American Hematology Society. It provides new and updated information about new research into the diagnosis, treatment…
ASH 2022 MDS and AML - Booklet
This publication offers summaries of selected abstracts presented at the Annual Meeting of the American Hematology Society held in December 2022. It provides new and updated information about research into the diagnosis…
ASH 2022 Aplastic Anemia and PNH - Booklet
This publication offers summaries of selected abstracts presented at the Annual Meeting of the American Hematology Society held in December 2022. It provides new and updated information about research into the diagnosis…
EMPAVELI Fact Sheet
What is EMPAVELI®? EMPAVELI® (previously known as pegcetacoplan) is the first PNH treatment that binds to complement protein C3. It is approved by the Food and Drug Administration for adult patients with paroxysmal…
How to Evaluate the Quality of Online Health Information
As you search online, you will find websites from many different sources. These seven questions will help you analyze and evaluate the credibility of each site you review. Many of these details can also be found in a…
Community Connections
Would you like to connect with other patients and families in your own town? Learn how you can participate in our volunteer-led Community Connections-local groups designed to inspire the creation of community…