living with disease

Community Rallied around Braeden's Family as he Fought Aplastic Anemia --- Now Family "Pays it Forward"

“Hey, Braeden, we need to go.”   
Little did 12-year-old Braden understand that he was headed towards hospital admission.

Earlier that day, Braden nearly passed out on the basketball court. He was a happy, athletic child, who excelled at several sports.  His mom, Becki, took him for blood work.

Later, Braeden’s parents heard from the doctor’s office: take him to the Emergency Department now.  That’s when Braeden’s dad came to pick him up from his friend’s house, where he’d been playing normally.

“Everything is going to be okay:” Jocelyn’s Story of Aplastic Anemia, PNH, and Survivorship

Before diagnosis, Jocelyn’s life was normal, predictable. She was thriving her senior year in college, studying Public Relations. In 2008, she was working, volunteering, attending classes---all the normal activities for a 20-year-old. 

But one day that changed. Extreme fatigue set in, making it difficult to walk a single flight of stairs. At first, she dismissed the fatigue to her rigorous schedule. 

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