2025 Kansas City Patient and Family Conference
Here are links to the conference sessions from the 2025 Kansas City Patient and Family Conference:
Graft Versus Host Disease (GVHD)
2025 Rockville Patient and Family Conference
The 2025 Patient and Family Conference in Rockville, MD was held on March 8, 2025.
Below are links to conference session recordings in full.
Can JAK inhibition prevent GVHD?
Original Publication Date
Article Source
External Web Content
In this issue of Blood, Pidala et al report on the results of a multicenter phase 2 trial, in which a graft-versus-host disease (GVHD) prevention regimen of pacritinib, an oral JAK2 inhibitor, in combination with sirolimus and tacrolimus successfully suppressed pSTAT3 signaling…
Aplastic Anemia, MDS, PNH Virtual Support Group-Saturdays-2026 February
AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious co
Abatacept for acute graft-versus-host disease prophylaxis after unrelated donor hematopoietic cell transplantation
Original Publication Date
Article Source
External Web Content
Key Points This study illustrates the survival benefits of abatacept combined with CNI/MTX in patients with hematologic malignancies undergoing HCT. The addition of abatacept may provide an approach for alternative donor pool expansion when HLA-identical sibling donors are…
Aplastic Anemia, MDS, PNH Virtual Support Group-Saturdays-2024-December
AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious co
Fatigue Management
Topic(s)
Living Well with Bone Marrow Failure
Presenter(s)
Timothy Pearman, PhD
Jenny Finkel
In this webinar, Dr. Tim Pearman discusses fatigue and how it can be best managed. Jenny Finkle demonstrates some gentle exercises you can do to increase your energy level. This was an interactive session.
GVHD (Graft VS Host Disease) - 2024 Philadelphia Patient and Family Conference
Topic(s)
Bone Marrow Transplant
Pashna N. Munshi, MD, describes the strategies that bone marrow transplant teams use to prevent GVHD, or Graft VS Host Disease. She also discusses prevalent treatments to help patients who develop this condition.
What is my Diagnosis? From the 2024 Seattle Patient and Family Conference
Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Bart Scott, MD
Dr. Bart Scott explains the diagnosis bone marrow failure diseases in this session from the 2024 Patient and Family Conference in Seattle, WA.
Nutrition and Bone Marrow Failure
Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
In this webinar, Doris Piccinin, registered dietician, will discuss how diet can play a role in living well with a bone marrow failure disease. You can submit questions in advance by emailing help@aamds.org.