Because patients need help in different ways, we offer a variety of support services. From the patient/family HelpLine and support networks to live conferences, online classes and volunteer events, our aim is to positively impact as many lives as we can. Our community members contribute to that goal by sharing their own inspirational Stories of Hope, supporting each other's need to stay positive and motivated.
Learning is hope and also a valuable form of self-support. Most patients say they'd never heard of their disease until their diagnosis. Once they understand it, they can more easily adjust to what's happening to their body and begin to take control of their health care. It's called empowerment, and it's one of the many skills we teach.
Inside our bones is a soft, spongy tissue called bone marrow. It is the "factory" that makes your blood cells. This includes red cells that carry oxygen to your body, white cells that fight infection, and platelets that stop bleeding. Bone marrow failure happens when your bone marrow is unable keep up with your body's need for healthy blood cells. Aplastic anemia, acute myeloid leukemia (AML), myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH) are bone marrow failure diseases.