Graft Versus Host Disease (GVHD)

Living Well with Bone Marrow Failure Disease from the 2022 Buffalo Patient and Family Conference

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Topic(s)
Aplastic Anemia
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Related Bone Marrow Failure Diseases and Malignancies
Megan Pailler, PhD, Assistant Professor of Oncology, provides clinical assessment and intervention services to oncology patients on both an inpatient and outpatient basis. Her area of focus has been the hematological services, including leukemia, lymphoma, and bone marrow…

Medicare Made Simple for Patients

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Topic(s)
Living Well with Bone Marrow Failure
Program participants will learn the basics of Medicare including how and when to enroll, the different parts of Medicare, the difference between Advantage and Supplement plans and what original Medicare does not cover, eligibility, how to avoid penalties, when to qualify for…

Ask the Transplant Expert

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Hemant Murthy, MD
Dr. Hemant Murthy provides brief transplant overview and then answers questions from participants. He tackles common and uncommon questions during this presentation, essential for all potential transplant patients and families to learn.

Ask the Pediatric Expert

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Topic(s)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Joseph Oved, MD
Dr. Joseph Oved answers questions from participants. The webinar covers most of the most pressing questions from parents about the disease and treatment of their child with bone marrow failure disease.

Living With Bone Marrow Failure Diseases - 2022 San Antonio Patient & Family Virtual Conference

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Krisstina Gowin, DO
In this conference session, Dr. Krisstina Gowin DO discusses best practices when living with bone marrow failure diseases.

Seeing Cancer From All Sides: Richard M. Stone Is Giant of Cancer Care in Leukemia

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External Web Content
Driven by his mother’s advice and his father’s memory, Richard M. Stone, MD, rose to become a global leader in leukemia care and research. Growing up, Richard M. Stone, MD, thought he was going to be an attorney like his father, but his direction in life changed when he was 15…

Science Simplified: What is a Natural History Study?

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Article Source
External Web Content
Want to learn about scientific topics without needing a PhD? Check out the Science Simplified blog from TESS Research Foundation! Dr. Tanya Brown, PhD, works with researchers to make science accessible and empower rare disease community members with scientific knowledge. Dr…

Ocular GVHD - Diagnosis and Treatment

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Topic(s)
Managing Your Treatment
Presenter(s)
Sandeep Jain, MD
In this webinar, Dr. Sandeep Jain will discuss the diagnosis and treatment of ocular GvHD which occurs in 40-60% patients following an allogenic transplant. Ocular GVHD may lead to severe ocular surface disease, which can significantly diminish quality of life and restrict daily…

Genetic Testing for Bone Marrow Failure Diseases

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Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
Presenter(s)
Jadee Neff, M.D., Ph.D., FCAP
In this webinar, Dr. Jadee Neff discusses how genetic testing used in the diagnostic process, how it can help identify possible causes of disease that inform decisions regarding appropriate therapies, identify potential donors for bone marrow transplant, and potential risk for…

Cutaneous Graft v Host Disease - Diagnosis and Treatment

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Topic(s)
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Managing Your Treatment
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Edward W. Cowen, M.D., M.H.Sc
In this webinar, Dr. Edward Cowen will discuss cutaneous (skin) graft v host disease (GvHD) - a common post-transplant complication. GvHD can affect different layers of the skin as well as the mouth, genitals, hair and sweat glands. Dr. Cowen will discuss diagnosis, the symptoms…
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