Clinical Trials
Clinical research Clinical research: A type of research that involves individual persons or a group of people.
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Caregiver Tips Donate to Support Our MissionClinical research Clinical research: A type of research that involves individual persons or a group of people.
Deferoxamine Deferoxamine: Deferoxamine is an iron-binding agent that belongs to a class of drugs known as heavy metal antagonists.
Prednisone Prednisone: Prednisone a man-made version of a hormone produced naturally by the adrenal gland that can help reduce inflammation and stop allergic responses.
A bone marrow transplant (BMT) bone marrow transplant (BMT): A procedure where bone marrow stem cells are c
Iron chelation therapy Iron chelation therapy: (kee-LAY-shun) A drug therapy to remove extra iron from the body.
A blood transfusion blood transfusion: A procedure in which whole blood or one of its components is given to a person through an intravenous (IV) line i
Blood clots are very dangerous. If you have a blood clot blood clot: A mass of blood that forms when platelets stick together. Harmful blood clots are more likely to happen in PNH.
AAMDSIF hosts Patient and Family Conferences around the United States each year.