Aplastic Anemia, MDS, PNH Virtual Support Group-Saturdays-2026 March
AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious co
Chronic Myelomonocytic Leukaemia (CMML)
Isolated KRAS and NRAS mutations in adults with monocytosis and/or cytopenia(s)
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Abstract NRAS and KRAS mutations, commonly identified alongside ancestral co-mutations, are generally regarded as pathogenic in adults presenting with monocytosis and/or cytopenia(s). However, their significance in isolation is not well defined. We studied a multi-institutional…
Inhibiting ferroptosis enhances ex vivo expansion of human haematopoietic stem cells
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Abstract Improved ex vivo expansion of human haematopoietic stem cells (HSCs) would considerably advance transplantation and genome-engineered therapies, yet existing culture methods still allow substantial HSC loss. Here we show that this attrition is driven largely by…
Oral Decitabine/Cedazuridine Plus Venetoclax Yields 91% ORR in High-Risk MDS and CMML
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Key Takeaways The combination therapy achieved a 91% overall response rate, with 45% complete remission and 46% marrow complete remission rates. Median overall survival was 30 months, with 1- and 3-year survival rates of 68.8% and 40.7%, respectively. SHOW MORE Decitabine…
Understanding Bone Marrow & Stem Cell Transplants
This guide provides important information about bone marrow and stem cell transplantation
Understanding Clinical Trials
This guide provides information about clinical trials and gives you some things to consider when deciding whether to take part
Financial Resources
A list of organizations & programs that may provide financial resources & other assistance
INQOVI Fact Sheet
INQOVI® (previously known as ASTX727) is a prescribed oral tablet combination of decitabine and cedazuridine approved by the Food and Drug Administration for adult patients with myelodysplastic syndromes (MDS) and…
Order Patient Educational Materials
AAMDSIF provides educational materials for patients and healthcare professionals written in plain language and reviewed by highly respected and recognized medical doctors who are experts in bone marrow failure
Transplant Patient Card
Emergency health information card for patients who have received a transplant.