paroxysmal nocturnal hemoglobinuria (PNH) | Page 9 | Aplastic Anemia & MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

Standardized High-Sensitivity Flow Cytometry Testing for Paroxysmal Nocturnal Hemoglobinuria in Children with Acquired Bone Marrow Failure Disorders: A Single Center U.S. Study

Author(s): 
Donohue RE, Marcogliese AN, Sasa GS, Elghetany MT, Redkar AA, Bertuch AA, Curry CV
Primary Author: 
Donohue RE
Journal Title: 
Cytometry B Clin Cytom
Original Publication Date: 
Jun 2017

BACKGROUND:

Nashville

Thank you for attending the 2017 Nashville Patient and Family Conference.

Event Date: 
Sat, 06/24/2017 -
7:30am to 1:30pm
Conference Event Type: 

A retrospective study of paroxysmal nocturnal hemoglobinuria in pediatric and adolescent patients

Author(s): 
Mercuri A, Farruggia P, Timeus F, Lombardi L, Onofrillo D, Putti MC, Pillon M, Cantarini ME, Corti P, Tridello G, De Bortoli M, Pegoraro A, Cesaro S
Primary Author: 
Mercuri A
Journal Title: 
Blood Cells Mol Dis
Original Publication Date: 
Mar 2017

Briana Donis

“I was having a pretty awesome year.  I was very well known at school and I had a boyfriend.”  She had just been accepted at the school of her choice when she noticed how really tired she was all the time. And then the bleeding started.

Ricky Smith, Jr.

"I just wanted to live the normal life of a teenager," said Ricky. But it just wasn’t meant to be. When he was taken to the hospital to find out why he’d become so weak, he passed out because he had so little blood in his body.

Management of thrombosis in paroxysmal nocturnal hemoglobinuria: a clinician's guide

Author(s): 
Griffin M, Munir T
Primary Author: 
Griffin M
Journal Title: 
Ther Adv Hematol
Original Publication Date: 
Mar 2017

Paroxysmal nocturnal haemoglobinuria (PNH), an ultra-orphan disease with a prevalence of 15.9 per million in Europe, is a life-threatening disorder, characterized by haemolysis,

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AAMDSIF Virtual Film Festival

Over the past few years, several documentaries and dramas about people living with aplastic anemia have been created by independent filmmakers and by patients themselves. These depict the everyday lives of patients coping with a diagnosis, the challenges presented by treatment and the hardship caused by inadequate medical insurance coverage.

Whether fictional movies, or stories about actual patients and families, these portrayals bring you into the world of bone marrow failure disease in an uncompromising and straightforward manner.