Myelodysplastic Syndromes (MDS)

Fatigue, symptom burden, and health-related quality of life in patients with myelodysplastic syndrome, aplastic anemia, and paroxysmal nocturnal hemoglobinuria.

Read more about Fatigue, symptom burden, and health-related quality of life in patients with myelodysplastic syndrome, aplastic anemia, and paroxysmal nocturnal hemoglobinuria.

BACKGROUND:

Fatigue is distressing and affects quality of life (QoL) among patients with myelodysplastic syndrome (MDS), aplastic anemia (AA), and paroxysmal nocturnal hemoglobinuria (PNH).

"What do I do now?" Nancy Corbitt, Nurse Navigator shares her wisdom

Duane's Normal, Active Life: Disrupted by MDS, Transfusions, Treatments

Patient Trusts Her Instincts in Finding the Right Treatment

Read more about Patient Trusts Her Instincts in Finding the Right Treatment

I never thought I would be diagnosed with cancer. I taught exercise classes, walked every day, ate a Mediterranean diet, and paid attention to products I used on my skin. I became a certified health coach and taught healthy living classes.

I Was Alone With MDS Until I Connected With Others on Social Media

Read more about I Was Alone With MDS Until I Connected With Others on Social Media

I sat quietly in the oncologist oncologist: (on-KAH-luh-jist) A doctor who specializes in the treatment and prevention of cancer. ’s office.

Confronting Challenges in Finding Matches for Multiracial Patients

Read more about Confronting Challenges in Finding Matches for Multiracial Patients

34-year-old Krissy Kobata is a passionate patient and advocate/activist. Diagnosed in 2008 with MDS, she’s the epitome of resilience as she has waited for years to find a matched donor.

I'm Like You: Barry Gore

Read more about I'm Like You: Barry Gore

As a young man, Barry Gore was a top-40 celebrity disc jockey, complete with an adoring fan club in the Greater Boston area. But like most first jobs, it lost its luster and he settled into sales and marketing while getting his MBA.

Alaskan Goes Home for Treatment and a Fresh Start

Read more about Alaskan Goes Home for Treatment and a Fresh Start

I tell people I'm unique - almost one of a kind. I am 40 years old and have recently been diagnosed with a rare type of MDS having an unusual deletion 12q cytogenetic abnormality, known MDS 12q (-), or MDS 12q minus. I was diagnosed in February of 2015 at age 38, however my health struggles began several years before that. I had been living in Alaska for nearly twenty-five years. In 2008, I was diagnosed with lymphocytic colitis (also a rare disease for someone of my age).

I'm Like You: Vincent Rusak

Read more about I'm Like You: Vincent Rusak

Vincent Rusak of New Kensington, PA, traveled extensively during his 26-year career as an expert electronic service technician. For 15 of those years, he was also a regular blood donor in his community.
His father’s quadruple bypass surgery, as well as a deep compassion for his fellow man, were Vince's motivation for contributing to his local blood banks every six to nine months. Little did he know that this selfless habit would someday save his life.