patient
Topic(s)
Bone Marrow Transplant
Managing Your Treatment
Presenter(s)
Sagar S. Patel, MD
Sagar Patel, MD, Huntsman Cancer Institute, explains this post-transplant condition and its treatments. Watch to learn more about techniques used to prevent GVHD as well as short-term and long-term complications.
Transplant for MDS, or Myelodysplastic Syndromes, from the Patient and Family Conference, Utah, 2023
Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Ryotaro Nakamura, MD
Ryotaro Nakamura, MD, City Of Hope, explains the reasons why the specialist may recommend a bone marrow transplant for a patient with MDS. The recording includes questions from the audience.
Transplant for Aplastic Anemia from the Patient and Family Conference in Salt Lake City, UT, 2023
Topic(s)
Pediatric Bone Marrow Failure Diseases
Bone Marrow Transplant
Aplastic Anemia
Presenter(s)
Michael Pulsipher, MD
Michael Pulsipher, MD, Primary Children's Hospital, explains the details of bone marrow transplant for aplastic anemia in this presentation. He explains how doctors determine when to recommend a transplant and the method of treatment.
PNH and Non-Transplant Therapies from the Patient and Family Conference in Salt Lake City, UT 2023
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Charles J. Parker, MD
Charles Parker, MD, AB from Huntsman Cancer Institute explains various treatments for patients with PNH, or Paroxysmal Nocturnal Hemoglobinuria, in this session. Dr. Parker explains why particular therapies are preferred as options for therapies continue to advance.
MDS and Non-Transplant Therapies from the Patient and Family Conference in Salt Lake City, UT, 2023
Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
PAUL J. SHAMI, MD
Paul J Shami, MD of Huntsman Cancer Institute describes the types of therapies that may be used in treating MDS, or Myelodysplastic Syndromes that do not include a bone marrow transplant.
PAUL J. SHAMI, MD
Institution
Huntsman Cancer Institute
Physician Status
accepting new patients
Primary Disease Area of Focus
Myelodysplastic Syndromes (MDS)
About
Languages Spoken: English, French, Arabic Dr. Paul Shami is a Professor of Medicine in the Division of Hematology and Hematologic Malignancies at the University of Utah and is a Member and Clinical Investigator at the University’s Huntsman Cancer Institute (HCI). Dr. Shami also holds an Adjunct appointment as a Professor of Pharmaceutics and Pharmaceutical Chemistry at the University of Utah. He is Board Certified in Hematology and Medical Oncology. He started at the University of Utah in 1997. Dr. Shami oversees leukemia clinical trials at Huntsman Cancer Institute. His research also includes
Aplastic Anemia Non-Transplant Therapies - Patient and Family Conference in Salt Lake City, UT 2023
Topic(s)
Aplastic Anemia
Presenter(s)
Srinivas Tantravahi, MBBS, MRCP
Srinivas Tantravahi, MBBS, MRCP (UK) of Huntsman Cancer Institute explains which non-transplant therapies may be considered for treatment of aplastic anemia.
Predisposition to Inherited Bone Marrow Failure Syndromes from Patient & Family Conference UT 2023
Topic(s)
Pediatric Bone Marrow Failure Diseases
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Presenter(s)
Suneet Agarwal, MD, PhD
Suneet Agarwal, MD, PhD from Boston's Children's Hospital provides essential information for families about inherited bone marrow failure disorders in this session from the Patient and Family Conference in Salt Lake City, UT, 2023
Prajwal Dhakal, MD
Institution
University of Iowa Health Care
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
Evaluation of the Quality of Life and Treatment Experiences of Patients with Paroxysmal Nocturnal Hemoglobinuria
The purpose of the study is to learn what it is like to have PNH and being treated with for PNH. Individuals who participate in the study will complete an online survey about what it is like to live with PNH. The survey will take about 45 minutes. Participants may also be asked to take part in a one-hour interview by telephone or computer. The interviewer will ask questions about what it is like to have, and be treated for, PNH. No medical treatment of any kind will be given as part of this study.
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