family / friend
Special Issues for People with PNH
How do I decide between antithymocyte globulin (ATG) and bone marrow transplant for treatment of aplastic anemia?
This is an individual decision and should be discussed in detail with your doctor and the medical team that would be involved in either treatment approach. They can help you understand your specific risks and potential benefits of these options.
What are the side effects of cyclosporine?
What are the risks related to getting a bone marrow/stem cell transplant?
It is important to weigh both the risks and the benefits of a bone marrow/stem cell transplant. A transplant doctor can answer your questions and help you decide if a transplant is an option for you.
What is active treatment or active drug therapy?
What are supportive therapies, also called supportive care?
Doctors will sometimes refer to certain treatments as supportive therapy or supportive care. They help you manage the symptoms of your disease, although they do not treat the underlying cause of the disease.
Is aplastic anemia, MDS or PNH inherited?
How long do I have to live?
How long do I have to live?
This is most people’s first question, along with “what can I expect to happen.” The doctor’s answer is called a prognosis (an educated guess about the likely course of your disease and how long you might live). Because each person is unique, and each person’s disease is different, a prognosis can be difficult to make. Also, how a disease progresses over time is unpredictable, and less is known about rare diseases than common diseases.
What are the treatments for MDS?
MDS treatment is designed to increase the number of healthy cells in your blood (blood count). When your blood counts go up you are less likely to need blood from a donor (transfusion), your quality of life becomes better and your symptoms are not as bad.