Fact Sheets

Our Fact Sheets are one or two page sources of information on diverse subjects related to bone marrow failure: A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Bone marrow failure can be acquired (begin any time in life) or can be… disease as well as other important topics like transplants.

Understanding Clinical Trials

This guide provides information about clinical trials and gives you some things to consider when deciding whether to take part

What is Biosimilar?

A Biosimilar is a type of biologic medication. The term “biosimilar” means that the medication is highly similar to the already approved brand name biologic (“originator” medication)

Student Guide

Supporting students with Bone Marrow Failure Diseases, a guide for parents and school personnel

What is PRCA?

Pure red cell aplasia (PRCA) is a condition in which the bone marrow stops producing red blood cells that are responsible for carrying oxygen

MarrowForums

MarrowForums provides free discussion forums for patients with bone marrow failure diseases

Iron Overload

Information about iron levels and the ways they fluctuate during treatment, alongside information about the effects of such fluctuations

Financial Resources

A list of organizations & programs that may provide financial resources & other assistance

Website Feedback

Please use this feedback form to report website issues only. For other issues concerning patients and families, please email help@aamds.org or use the Patient and Family Helpline here.