AAMDSIF is the administrator of the MDS Clinical Research Consortium (MDS CRC), a unique collaboration of six leading medical institutions designed to maximize the results of their MDS clinical trials. By sharing and comparing data, the group is able to enhance treatments and improve the lives of all MDS patients.
Participating institutions include Weill Cornell Medicine Leukemia Program in New York, the Cleveland Clinic Taussig Cancer Institute, the Dana-Farber Cancer Center in Boston, MD Anderson Cancer Center in Houston, H. Lee Moffitt Cancer Center and Research Institute in Tampa, and the Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins in Baltimore.
The MDS CRC was created with a grant from the Edward P. Evans Foundation. Suffering from MDS himself, philanthropist Evans was determined to bring focus and collaboration to MDS research to improve patient options and treatment outcomes.
CRUSH!!MDS is a research initiative of the MDS CRC, and stands for Clinical Repository to Understand, Study and Heal MDS.
CRUSH!!MDS is housed at Weill Cornell Medicine Leukemia Program, and its website profiles multiple clinical trials underway through the MDS CRC and offers patients an opportunity to contribute health information to the registry to be used for research into MDS.
The Myelodysplastic Syndromes in Vietnam-Era Veterans Study is an initiative of the MDS CRC. To read more about the study, visit http://mdsinveterans.dana-farber.org/. If you are a Vietnam veteran or are interested in participating in the control group that will be matched by age, please contact the Study Coordinator.