Brianne Sandborn

Brianne Sandborn, a social studies teacher living in Michigan, was diagnosed with PNH in 2009. In 2015, Brianne founded and chaired the “PNH…Rare But Real” golf tournament in her hometown of Portland, Michigan. With the help of family, friends, and her local community, she has held this golf event in the summer annually. Over the past nine years, this event has raised over $116,000. 

Beyond her leading her event, Brianne has also supported the Foundation’s broader fundraising strategy by lending her name and story to the 2024 End of Year fundraising campaign.