Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Aplastic Anemia and MDS International Foundation

Serving the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities, AAMDSIF empowers patients and their families, invests in research that speeds the search for new treatments and potential cures, promotes high-quality care by educating healthcare providers, and ensures our patients’ voices are heard through awareness and advocacy.

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Quick Links: Resources for You

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The AAMDS International Foundation has been an integral part of our life since Mario’s diagnosis 13 years ago. We have gained knowledge, support and, most importantly, developed lasting relationships. We continue to depend on them to provide cutting-edge information and patient and family support.

AAMDSIF Events and Inspiration

Patient and Family Conferences»

Saturday, September 27, 2025 - 7:30am

CONFERENCE AGENDA - September 27, 2025 (Eastern Time Zone)

March for Marrow and Community Fundraisers»

Sunday, September 28, 2025 - 10:30am

Join us in Verona Park, NJ on Sunday, September 28, 2025 for a day of remembrance and awareness in celebration of the 19th Annual Walk for...

Stories of Hope»

Precious Mathabatha

As a girl in South Africa, I was healthy and active. I started college at the University of Limpopo, studying Business/Accounting in 2011...

Professional Conferences»

March 6, 2025

2025 AAMDSIF Bone Marrow Failure Summit: Translating Science to Advance Patient Outcomes Since it was founded in 1983, AAMDSIF has...

Online Library

Webinars »

July 19, 2025

In this webinar, Kylie Chen, Registered Dietitian, discusses common nutrition challenges and evidence-based strategies to improve...

Podcast Episodes »

AAMDSIF Podcast for Patients

Pediatric nurse to medical student to patient? This was Claire's life. Listen to her story here.

Conference Materials »

Saturday, July 19, 2025 - 10:30am

Recorded Sessions: Nutrition for Aplastic Anemia, MDS, or PNH Managing PNH Treatments Advances in Aplastic Anemia What is PNH?...

Research Articles »

Originally published: June 18, 2025

Myelodysplastic syndromes (MDS) is a heterogeneous group of pre-leukemic diseases characterized by peripheral blood cytopenia, morphologic dysplasia...

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Give So No One Faces This Alone

“The Foundation played a crucial role in my initial understanding of the disease. It was my first exposure to other patients grappling with similar challenges. Connecting with other patients provided me with perspectives that my healthcare team couldn’t offer. Having these connections brought a sense of relief and hope to my journey. Your donation can help AAMDSIF support patients like me facing similar challenges.”

Your Donation Helps Patients »