Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Aplastic Anemia and MDS International Foundation

Serving the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities, AAMDSIF empowers patients and their families, invests in research that speeds the search for new treatments and potential cures, promotes high-quality care by educating healthcare providers, and ensures our patients’ voices are heard through awareness and advocacy.

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Quick Links: Resources for You

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The AAMDS International Foundation has been an integral part of our life since Mario’s diagnosis 13 years ago. We have gained knowledge, support and, most importantly, developed lasting relationships. We continue to depend on them to provide cutting-edge information and patient and family support.

AAMDSIF Events and Inspiration

Patient and Family Conferences»

Saturday, September 14, 2024 - 8:30am

Register now for the 2024 Patient and Family Conference, held in partnership with the University of Chicago.

March for Marrow and Community Fundraisers»

Saturday, September 21, 2024 - 8:00am

March for Marrow 5K Run & Walk in Arlington, VA. Sunday, October 1st. For 40 years, the

Stories of Hope»

Marianna De Leon

As a typical community college student, Mariana was busy. Classes, studying, day trips, all were part of her life. Yet during one shower,...

Professional Conferences»

November 8, 2024

Save the Date for the 3rd Annual DEI Symposium for Bone Marrow Failure Care, to be held in Miami, Florida, on November 8, 2024.  ...

Online Library

Webinars »

July 20, 2024

In this webinar, Doris Piccinin, registered dietician, will discuss how diet can play a role in living well with a bone marrow failure...

Conference Materials »

Friday, July 19, 2024 - 2:00pm

The conference was held over two days - Friday, July 19 from 2-7 PM ET and Saturday, July 20 from 8AM - 4 PM ET. Watch these recordings from...

Research Articles »

Originally published: July 18, 2024

Background: Lenalidomide is the standard of care for patients who are transfusion dependent with chromosome 5q deletion (del[5q])...

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Together, we are helping the community.

“Living with a chronic disease can feel isolating. Through AAMDSIF, I was able to connect with the PNH community and form meaningful bonds. Connecting with others who share similar experiences made me feel less alone. Leaving the community better than I found it is important to me. Helping others live their “new normal” is important to me. Your support helps improve patients’ lives and enables them to join a compassionate community of support—a community that I have greatly benefited from firsthand.”

Your donation supports our mission »