Aplastic Anemia and MDS International Foundation (AAMDSIF)

Aplastic Anemia and MDS International Foundation

Serving the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities, AAMDSIF empowers patients and their families, invests in research that speeds the search for new treatments and potential cures, promotes high-quality care by educating healthcare providers, and ensures our patients’ voices are heard through awareness and advocacy.

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Quick Links: Resources for You

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The AAMDS International Foundation has been an integral part of our life since Mario’s diagnosis 13 years ago. We have gained knowledge, support and, most importantly, developed lasting relationships. We continue to depend on them to provide cutting-edge information and patient and family support.

AAMDSIF Events and Inspiration

March for Marrow and Community Fundraisers»

Thursday, May 29, 2025 - 8:00am

As we prepare for the upcoming golf tournament, benefiting AAMDSIF a nonprofit organization that helps people living with PNH, it is with a heart...

Stories of Hope»

Jeff Paccione

On April 15, 2007, my husband Jeff, age 39, tucked our two and three year old boys into bed. He suddenly yelled down to me in a concerned...

Professional Conferences»

March 6, 2025

2025 AAMDSIF Bone Marrow Failure Summit: Translating Science to Advance Patient Outcomes Since it was founded in 1983, AAMDSIF has...

Online Library

Webinars »

April 26, 2025

In this webinar, Dr. David Sallman discusses the diagnosis of MDS and MPN, treatment options available to patients and symptom management...

Conference Materials »

Friday, April 25, 2025 - 5:30pm

Here are links to the conference sessions from the 2025 Kansas City Patient and Family Conference: MDS/MPN Overlap PNH and Current Therapies...

Research Articles »

Originally published: April 30, 2025

Acquired aplastic anemia (AA) is an immune-mediated disorder leading to bone marrow failure characterized by pancytopenia, with infectious and...

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Your Support Powers Our Community

“With over 17 years experience supporting and advocating for patients at the Aplastic Anemia and MDS International Foundation, I've seen firsthand how important community support is when facing the challenges of a rare disease. Every contribution enables AAMDSIF to continue providing free and accessible programs that strengthen our community. Together, we can make a real difference in our community!”

Help strengthen our community today »