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Dr. Mikkael Sekeres describes why patients should request a second opinion about their bone marrow failure disease or blood cancer. He also shares his own perspective about asking for a second opinion, recommending that patients do select this option.Podcast Episode last updated September 21, 2023.Node ID (debugging only): 10335
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PURPOSE: Patients who have cancer have leveraged the Internet to gain a better understanding of their disease and connect across geographic boundaries with others facing the same challenges. Online cancer communities have developed into resources that highlight new research and evolving care pathways. Combined with increasing health literacy and social media, they have enabled some patients to...Article last updated May 30, 2023.Node ID (debugging only): 9951
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What is "Chemo Brain" and how is it managed? Find out the best approaches for dealing with this common side effect in this recording with Dr. Jorg Dietrich.Podcast Episode last updated May 30, 2023.Node ID (debugging only): 10109
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When should patients be vaccinated, and with which version of the COVID-19 Vaccine? Learn all about how each type of vaccine works and which patients with bone marrow failure diseases should be vaccinated.Podcast Episode last updated May 30, 2023.Node ID (debugging only): 10096
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What is a clinical trial? Why should a patient consider participating in one? Olga Rios, RN, offers a brief explanation in this recording.Podcast Episode last updated November 21, 2022.Node ID (debugging only): 10083
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Christina Cline, RN, at the University of Florida Health Cancer Center, describes one of the common symptoms of treatment for bone marrow failure diseases: fatigue. Learn how patients can communicate about their fatigue with their health care team as well as which strategies may help.Podcast Episode last updated November 21, 2022.Node ID (debugging only): 10082
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Dr. Nandita Khera discusses why and when transplants can be recommended for older patients in this podcast episode.Podcast Episode last updated November 2, 2022.Node ID (debugging only): 10074
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Learn all about the risks, benefits, and side effects of the transplantation process.Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8332
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Kat hears patients ask: "I have this bone marrow failure problem ... how is this going to affect me and loved ones? What does this mean for my life?" Discover how Kat helps walk patients through diagnosis, treatment, and survivorship.Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8211
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Why would I choose a clinical trial? What kind of additional care would I receive? How do I know if I qualify? Christina Cline, RN, BSN, CCRC, explains both patient and nurse navigator roles in this recent recording.Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8470
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Dr. Mikhail Kogan, Medical Director of the GW Center for Integrative Medicine, discusses incorporating Integrative Medicine into a patient's treatment plan. He describes using yoga, meditation, and other techniques to help patients while they are in treatment for bone marrow failure conditions.Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8349
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Can sleep affect your treatment for bone marrow failure diseases? Dr. Asefa Mekonnen explains why sleep is important for patients as well as when to tell your doctor that you aren't sleeping well. Check this out!Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8208
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Nancy has worked with hundreds of patients in her career, guiding patients through decision-making and treatment. Discover her best advice for bone marrow failure patients and caregivers in this podcast.Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8187
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Senior Director of Health Professional Programs, Alice Houk, describes how your health care team can become your Partner toward health in this interview.Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8175
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This is the first episode of our new podcast. Leigh Clark, Patient Educator, describes the bone marrow failure journey and how AAMDSIF can help!Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8157
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Want to learn about scientific topics without needing a PhD? Check out the Science Simplified blog from TESS Research Foundation! Dr. Tanya Brown, PhD, works with researchers to make science accessible and empower rare disease community members with scientific knowledge. Dr. Brown has over a decade of experience in neurodevelopmental research and is currently the Scientific Director for TESS...Article last updated February 18, 2022.Node ID (debugging only): 9917
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The mRNA COVID-19 Vaccines Are Safe and Effective for Most Patients with Cancer For most patients with cancer, the mRNA COVID-19 vaccines are safe and effective. This article explains the results of the first study that evaluated the safety and effectiveness of the mRNA vaccines in patients with solid cancers, such as lung, breast, or prostate cancer. November 2021 – Lung Cancer Laura Morgan The...Article last updated January 24, 2022.Node ID (debugging only): 9849
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Raising money for AAMDSIF through fundraising events also raises awareness for rare bone marrow failure diseases. Your participation by recruiting friends, family, and coworkers spreads the word and helps fund the mission of AAMDSIF.Sectioned page last updated April 18, 2024.Node ID (debugging only): 10336
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AAMDSIF provides educational materials for patients and healthcare professionals written in plain language and reviewed by highly respected and recognized medical doctors who are experts in bone marrow failure diseases. If you are a patient: please fill out the form below and a complete information packet will be mailed to you free of charge. Alternatively you can...Webform last updated April 12, 2024.Node ID (debugging only): 8326
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AAMDSIF receives support from corporate partners who invest in advancing our mission. Thanks to their financial contributions, we are able to provide answers, support, and hope to patients, their families, and healthcare professionals entrusted with providing quality care. AAMDSIF Corporate Partners provide financial and in-kind support of programming through sponsorships and grants. AAMDSIF...Page last updated April 4, 2024.Node ID (debugging only): 10356