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The conference will occur over two days - Friday, July 19 from 2-7 PM ET and Saturday, July 20 from 8AM - 4 PM ET. This conference will provide sessions for both adults and children. At the hotel, parking is valet only and paid by AAMDSIF. Conference location - The Inn at Penn @ 3600 Sansome Street Philadelphia, PA 19104Conference Event last updated April 1, 2024.Node ID (debugging only): 10487
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Evan biked daily. He had no symptoms. The diagnosis was fast, but surprising. Evan shares his remarkable story in this episode.Podcast Episode last updated January 11, 2024.Node ID (debugging only): 10406
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Dr. Mikkael Sekeres describes why patients should request a second opinion about their bone marrow failure disease or blood cancer. He also shares his own perspective about asking for a second opinion, recommending that patients do select this option.Podcast Episode last updated September 21, 2023.Node ID (debugging only): 10335
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Thank you for attending the 2023 Salt Lake City Patient and Family Conference. We will keep uploading presentations as we receive them, please keep checking back for updates. Presentation Materials: Predisposition to Inherited Bone Marrow Failure Syndromes Aplastic Anemia and Non-Transplant Therapies MDS and Non-Transplant Therapies PNH and Non-Transplant Therapies Ask the...Conference Event last updated August 3, 2023.Node ID (debugging only): 10287
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PURPOSE: Patients who have cancer have leveraged the Internet to gain a better understanding of their disease and connect across geographic boundaries with others facing the same challenges. Online cancer communities have developed into resources that highlight new research and evolving care pathways. Combined with increasing health literacy and social media, they have enabled some patients to...Article last updated May 30, 2023.Node ID (debugging only): 9951
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Abstract Background Despite widespread use, little is known about how adolescents and young adults (AYA) with cancer use social media (SM). This research characterized use and self-reported SM experiences among AYA with cancer. Procedure AYA, aged 12-26 years, receiving cancer care completed a mixed-methods survey regarding SM experiences. Clinical information was obtained from the electronic...Article last updated May 30, 2023.Node ID (debugging only): 9948
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Editor's note: Here's an update on Mychaela (see Stories of Hope) Mychaela Lovelace is a sophomore at Michigan State University majoring in kinesiology in the College of Education, and is a scholar and mentor in the Dow STEM Scholars Program. On April 1, 2008, at the age of 5 I was diagnosed with severe aplastic anemia, which is a rare condition that occurs when your body stops...Article last updated May 30, 2023.Node ID (debugging only): 9940
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Key Points Structural racism (SR) assessed by census tract variables accounts for nearly all Black-white and Hispanic-white disparity in AML survival. Structural Racism is a stronger mediator of survival disparities than molecular features, co-morbidities, healthcare access and treatment. Non-Hispanic Black (NHB) and Hispanic patients with acute myeloid leukemia (AML) have higher mortality rates...Article last updated May 30, 2023.Node ID (debugging only): 9949
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Article last updated May 30, 2023.Node ID (debugging only): 9970
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Driven by his mother’s advice and his father’s memory, Richard M. Stone, MD, rose to become a global leader in leukemia care and research. Growing up, Richard M. Stone, MD, thought he was going to be an attorney like his father, but his direction in life changed when he was 15. His father, Benjamin, developed kidney cancer when Stone was just 5 years old, and 10 years later, the disease...Article last updated May 30, 2023.Node ID (debugging only): 9935
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BOSTON--(BUSINESS WIRE)--Aug. 1, 2022-- Gamida Cell Ltd. (Nasdaq: GMDA), the leader in the development of NAM-enabled cell therapy candidates for patients with hematologic and solid cancers and other serious diseases, announced today that the U.S. Food and Drug Administration (FDA) has accepted for filing the Company’s Biologics License Application (BLA) for omidubicel for the treatment of...Article last updated May 30, 2023.Node ID (debugging only): 10016
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When should patients be vaccinated, and with which version of the COVID-19 Vaccine? Learn all about how each type of vaccine works and which patients with bone marrow failure diseases should be vaccinated.Podcast Episode last updated May 30, 2023.Node ID (debugging only): 10096
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What is a clinical trial? Why should a patient consider participating in one? Olga Rios, RN, offers a brief explanation in this recording.Podcast Episode last updated November 21, 2022.Node ID (debugging only): 10083
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Christina Cline, RN, at the University of Florida Health Cancer Center, describes one of the common symptoms of treatment for bone marrow failure diseases: fatigue. Learn how patients can communicate about their fatigue with their health care team as well as which strategies may help.Podcast Episode last updated November 21, 2022.Node ID (debugging only): 10082
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Charles J. Parker, M. D., is Professor of Medicine in the Division of Hematology and Hematologic Malignancies, Department of Internal Medicine, at the University of Utah, the Huntsman Cancer Institute and the George E. Whalen VA Medical Center, Salt Lake City, UT.Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8251
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Brian's surprise MDS diagnosis leads to an unsettling strategy: watch and wait! Listen to him describe how he makes the most from the long-term waiting with low-risk MDS in this conversation with AAMDSIF.Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8351
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Dr. Inga Hofmann is a University of Wisconsin Health pediatrician who specializes and is director of pediatric bone marrow transplant and hematology. She is devoted to rare childhood bone failure diseases and myelodysplastic syndromes in her focus and Dr. Hofmann was recently appointed medical director of the PACT program for advanced cell therapy initiative, which is being led by Dr. Jacques...Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8256
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Dr. Eunice Wang explains the origin and treatment of secondary MDS. Dr. Wang is the Chief of the Leukemia Service at Roswell Park Comprehensive Center.Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8906
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Terri shares the journey of Thomas' surprise diagnosis, rigorous treatment, and wonderful survivorship in this conversation.Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8671
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H. Joachim Deeg, MD, is a board certified oncologist at Seattle Cancer Care Alliance, a University of Washington Professor of Medicine and Oncology and a researcher at Fred Hutchinson Cancer Research Center.Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8253