Professionals

2nd Annual DEI Symposium for Bone Marrow Failure Care

This symposium will provide updates on the most recent advances in the pathophysiology, diagnosis and clinical management of bone marrow failure diseases, including aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), secondary acute myeloid leukemia (AML) and hematopoietic stem cell transplantation. Panel discussions will address the current gaps in patient care for each of these diseases, including: 

• Diversifying clinical trial enrollment 
• Addressing barriers to care – ageism, geographic and cultural challenges, delays in diagnosis, genetic profiling, long term supportive care 
• Assessing quality of life issues and shared decision-making 

Target audience: Physicians, APPs, NPs, nurses and social workers.  

Register Here

 

 

 

AAMDSIF 40th Anniversary Summit

Since it was founded in 1983, AAMDSIF has partnered with clinicians and researchers to identify knowledge gaps in diagnosing and treating bone marrow failure and the research priorities needed to advance the field.
In honor of the AAMDSIF 40th Anniversary, this hybrid Summit will convene leading international experts in bone marrow failure to review significant advances in diagnosis and treatment and to determine future priorities for translational research.

PROGRAM HIGHLIGHTS:

Thursday, October 26, 2023 | 1pm - 8.30pm

Keynote Address: Progress in the Understanding of Bone Marrow Failure Since 1983
David Steensma, MD, FACP
Panel Sessions: Advances in Science and Treatment
Aplastic Anemia Panel
Moderator: Amy DeZern, MD, MHS, Johns Hopkins University
PNH Panel
Moderator: Carlos DeCastro, MD, Duke University
MDS Panel
Moderator: Olatoyosi Odenike, MD, University of Chicago
Reception and Poster Session
40th Anniversary Dinner Honoring Scientific Leaders in Bone Marrow Failure

 

• AAMDSIF Lifetime Achievement in Science Awards
• AAMDSIF Research Grantees

Friday, October 27, 2023 | 8am - 1.30pm

Pipeline Reports
Panel Session: The Future of Clinical Trials
Moderator: Mikkael Sekeres, MD, MS, University of Miami
Panel Session: Priorities for Future Research
Moderator: Timothy Graubert, MD, Massachusetts General Hospital
Summary Remarks
Olatoyosi Odenike, MD, AAMDSIF Medical Advisory Board Vice Chair
Closing Luncheon

 

Poster Session: Abstracts summarizing new, ongoing, or updated research in bone marrow failure may be submitted here by September 29, 2023.
Travel Support for New Investigators. Limited Travel support is available. Apply here.
For more information contact Alice Houk at houk@aamds.org.

Register Here

Join us at Advances in the Treatment Paradigm of Myeloid Malignancies: From Biology to Clinical Practice

Plan to attend this complimentary CME satellite symposium that provides an in-depth and up-to-date review of research related to the biology, prognosis, natural history, and therapeutic management of patients with AA, PNH, MDS, AML, MPN, and related myeloid malignancies. The overall goal of the program is to bring together leaders in disease research and clinical practice to explore solutions to improving the care of these patient populations.

By attending, you will be able to:

• Describe risk factors and implications of clonal hematopoiesis and potential strategies to modify the natural history of clonal hematopoiesis.
• Outline best available evidence in managing patients with PNH.
• Formulate appropriate evaluation and management strategies for patients with aplastic anemia and other bone marrow failure conditions.
• Critically review the MDS diagnostic criteria in light of recent changes in disease nomenclature and describe expanding treatment strategies for low-risk and high-risk MDS.
• Describe the new diagnostic criteria for AML and how to make personalized treatment decisions in patients with AML.  
• Critically appraise the indications, efficacy, and adverse events for the expanding treatment options for patients with myeloproliferative neoplasms.
• Synthesize current research on the role of cellular therapies in AML and their future potential.

Who Should Attend?

The satellite symposium is designed for an international audience including medical oncologists, hematologists, clinical and translational researchers, and other physicians, nurses, advanced practice nurses, physician assistants and allied health care professionals treating patients with MDS, AML and myeloid malignancies. In addition, members of patient advocacy groups will benefit from this program.

This is a Friday Satellite Symposium organized by the Cleveland Clinic Taussig Cancer Institute and the Aplastic Anemia and MDS International Foundation, Inc., preceding the 65th ASH Annual Meeting and Exposition. ASH Annual Meeting registration is not required to participate in the symposium.

Register Here

 

 

A Thread to Pull: Unraveling the Complexities of Myeloid Malignancies - View On Demand

This complimentary CME satellite symposium provides an in-depth and up-to-date review of research related to biology, prognosis, natural history, and therapeutic management of patients with myeloid malignancies including PNH, MDS, AML, MPN and related myeloid malignancies. The overall goal of the program is to bring together leaders in disease research and clinical practice to explore solutions to improving the care of these patient populations.

CE Accreditation Period: 1/16/2023 – 1/16/2025

• Topic(s): Related Bone Marrow Failure Diseases and Malignancies, Myelodysplastic Syndromes (MDS), Acute Myeloid Leukemia (AML)
• Presenter: Sudipto Mukherjee, MD, MPH
• Presenter: Bhumika Patel, MD
• Presenter: Rodrigo Calado, MD, PhD
• Presenter: Guillermo Sanz, MD, PhD
• Presenter: Roland B. Walter, MD, PhD, MS
• Presenter: Gabriela Hobbs, MD
• Presenter: Craig S. Sauter, MD

To watch on demand: Register Here

Providing Equitable and Inclusive Care to Patients with Bone Marrow Failure Conditions

This free virtual symposium provides updates on the most recent advances in the pathophysiology, diagnosis and clinical management of bone marrow failure diseases, including aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), secondary acute myeloid leukemia (AML) and hematopoietic stem cell transplantation. Additionally, the program addresses the current gaps in patient care for each of these diseases, such as clinical trial enrollment, reaching diverse patient populations, barriers to care, diagnostic challenges, genetic profiling, long term supportive care, and quality of life issues. Speakers include representatives of innovative programs focusing on closing inequities and underserved patient populations. The patient voice is also represented through patient panelists and patient survey responses.

Target Audience: Physicians, Fellows, APPs, NPs, nurses and social workers.

Program Sessions:

Myelodysplastic Syndromes and Secondary AML

• Update on Diagnosis and Treatment
  • Low-Risk MDS – Namrata Chandhok, MD, Assistant Professor,
    Sylvester Comprehensive Cancer Center, University of Miami
  • High-Risk MDS – Mikkael Sekeres, MD, MS
    Professor, Sylvester Comprehensive Cancer Center, University of Miami
• Addressing the Gaps in Serving Patients with MDS - Panel Discussion
  • Irum Khan, MD, MS, Associate Professor, University of Illinois
  • Leyla Shune, MD, Associate Professor, Hematologic Malignancies and Cellular
    Therapeutics University of Kansas Cancer Center

Aplastic Anemia and PNH – Update on Diagnosis and Treatment

• Carlos DeCastro, MD, Professor, Duke University
• Addressing the Gaps in Serving Patients with Aplastic Anemia and PNH - Panel Discussion
  • Emma Groarke, MD, NHLBI Hematology Branch
  • Susie Lee, PA-C, Keck School of Medicine, University of Southern California
  • Debra O’Neal, MSW, Patient

Hematopoietic Stem Cell Transplantation

• Amy DeZern, MD, MPH – Johns Hopkins University
• Addressing the Gaps in Serving Transplant Patients - Panel Discussion
  • Linda Burns, MD, Consultant and Senior Scientific Director, National Marrow Donor Program, CIBMTR
  • Nandita Khera, MD, MPH, Associate Professor, Mayo Clinic Arizona

Supportive Care and Outpatient Management of Patients with Bone Marrow Failure Conditions - Panel Discussion

• Jennifer Lotter PA, NHLBI Hematology Branch
• Sandrine Niyongere, MD, Assistant Professor, University of Maryland
• Anastasia Marie Santiago, DNP, APRN, FNP-BC, AOCNP, Sylvester Comprehensive Cancer Center, University of Miami Hospital and Clinics

Watch the full Symposium HERE

Leukemia, Lymphoma & Myeloma Congress

October 18-21, 2023
New York City, NY

Registration and Information

Bone Marrow Failure Disease Scientific Symposium 2022

This biennial Scientific Symposium is the only international forum focused solely on bone marrow failure diseases. The world’s leading researchers on aplastic anemia, MDS, and PNH convened to discuss current areas of consensus and controversy, share recent research results, and identify the highest-priority directions for basic and clinical research to advance the field.

Symposium Co-Chairs: Richard Stone, MD, Dana-Farber Cancer Institute and Neal Young, MD, NHLBI

Symposium sessions included:

Thursday, May 19
• Genetics and Genomics of Bone Marrow Failure
• Somatic Mutations in Benign Diseases: AA, PNH, VEXAS Syndrome
• Advances in Paroxysmal Nocturnal Hemoglobinuria
• Transplantation for Bone Marrow Failure
• Non-transplant Therapies for Marrow Failure

Friday, May 20
• MDS and Secondary AML Pathophysiology
• MDS Tools for Prognosis: Regaining Consensus
• Treatments for MDS and Secondary AML

View session leaders’ summary interviews here.

The symposium is supported by educational grants from Novartis, Alexion, Apellis, Biocryst, Regeneron, and Geron.