PNH Foundation Merges with AAMDSIF | Aplastic Anemia & MDS International Foundation Return to top.

PNH Foundation Merges with AAMDSIF

Introductory image: A moment of silence

Now comes the business of seamlessly incorporating the components of the PNHF so that we create a unified organization that fits the needs of all of our patients.

Our number-one priority has always been to effectively and efficiently present our organization as the resource hub for all bone marrow failure disease patients, families and health professionals. To that end, we’ve been talking with branding experts about renaming AAMDSIF to better reflect our diseases, as well as our mission and vision.

This is no small thing, but it is a work in progress. It will take several months of research and analysis – including input from all of our stakeholders – before we have a sense of the best direction to take. We expect to have a decision one way or the other by the end of summer.

Noted here are direct links to PNH-specific information:

And we are here to answer your questions. Please contact  our Patient Educator by phone  (800) 747-2820 x140 or by email.

Have you been wondering how to get involved with PNH research but did not know where to start? Here’s your chance! Check out the Global PNH Patient Registry at:
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