Although there are many knowledgeable hematologists, it is highly possible that because of the rarity of PNH , your local community hematologist may never have seen patient with PNH. Seeking a second opinion from a PNH specialist -- one who has treated many cases and is up to date on current research and treatment -- is something the Foundation feels is important. A PNH specialist is an excellent partner to your community hematologist. In creating your support team, (family, friends, other patients, and medical professionals), be sure to include a PNH specialist. It is assuring to know your community hematologist has a expert already lined up who is familiar with your case.
AAMDSIF may be able to provide financial aid up to $3,000 per eligible, U.S.-based PNH patient with demonstrated financial need, for the following costs:
- Medical fees (not covered by insurance) and related travel expenses to see a PNH specialist for the first time
- Travel and housing fees for PNH patients undergoing a bone marrow transplant
To apply for patient support, please complete the following form. A volunteer or our patient educator will be in touch to discuss your individual situation. You can reach our patient educator directly by email or phone (800) 747-2820 x140.
Please apply for patient support prior to making your appointment to visit a specialist or to undergo peripheral blood stem cell transplantation (PBSCT) or bone marrow transplant. Please allow 2-4 weeks for your application to be reviewed.