treatment

Emma Groarke, MD, FRCPath

Institution
National Lung, Heart and Blood Institute (NLHBI)
Physician Status
available for consultation
Primary Disease Area of Focus
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pure Red Cell Aplasia (PRCA)
About
Dr. Emma M. Groarke is a hematologist in Bethesda, Maryland at the National Lung, Heart and Blood Insititute. She received her medical degree from University College of Dublin. Dr. Groarke research involves Clinical trials in acquired and inherited bone marrow failure.

Ocular GVHD - Diagnosis and Treatment

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Topic(s)
Managing Your Treatment
Presenter(s)
Sandeep Jain, MD
In this webinar, Dr. Sandeep Jain will discuss the diagnosis and treatment of ocular GvHD which occurs in 40-60% patients following an allogenic transplant. Ocular GVHD may lead to severe ocular surface disease, which can significantly diminish quality of life and restrict daily…

Genetic Testing for Bone Marrow Failure Diseases

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Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
Presenter(s)
Jadee Neff, M.D., Ph.D., FCAP
In this webinar, Dr. Jadee Neff discusses how genetic testing used in the diagnostic process, how it can help identify possible causes of disease that inform decisions regarding appropriate therapies, identify potential donors for bone marrow transplant, and potential risk for…

Jadee Neff, M.D., Ph.D., FCAP

Institution
Duke Cancer Center
Physician Status
available for consultation
Primary Disease Area of Focus
Pediatric
About
Dr. Jadee Neff is a board-certified Pathologist who sees patients at Duke Cancer Center, Duke University Hospital and Duke Eye Center. She obtained her MD and PhD degrees at the Mayo Clinic College of Medicine and did her AP/CP pathology residency at Mayo Clinic. As a diagnostic hematopathologist and molecular genetic pathologist, her clinical interests are focused on the histologic examination of tissue and bone marrow biopsies to diagnose hematologic malignancies (leukemia, lymphoma, myeloma, etc.) as well as testing DNA from tumors or from blood to detect inherited or acquired mutations

Pediatric PNH - Diagnosis and Treatment

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Satheesh Chonat, MD
In this webinar, Dr. Satheesh Chonat will discuss what is PNH, how PNH is diagnosed and what treatment options are available to pediatric patients. After the presentation, Dr. Chonat will answer questions from participants. Advance questions can be submitted to help@aamds.org.

Satheesh Chonat, MD

Institution
Children’s Healthcare of Atlanta
Physician Status
available for consultation
Primary Disease Area of Focus
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric
About
Satheesh Chonat, MD, is a Pediatric Hematologist and Oncologist at Children’s Healthcare of Atlanta and board-certified in pediatrics and pediatric hematology/oncology. He specializes in the care of children and young adults with nonmalignant rare blood disorders by using a variety of clinical and research-based tools. Dr. Chonat is the site investigator for various clinical and translational research projects, focused on rare red blood disorders, such as pyruvate kinase disease, thrombotic thrombocytopenic purpura and paroxysmal nocturnal hemoglobinuria. The main focus of his laboratory

Cutaneous Graft v Host Disease - Diagnosis and Treatment

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Topic(s)
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Managing Your Treatment
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Edward W. Cowen, M.D., M.H.Sc
In this webinar, Dr. Edward Cowen will discuss cutaneous (skin) graft v host disease (GvHD) - a common post-transplant complication. GvHD can affect different layers of the skin as well as the mouth, genitals, hair and sweat glands. Dr. Cowen will discuss diagnosis, the symptoms…

Edward W. Cowen, M.D., M.H.Sc

Institution
National Institute of Arthritis and Musculoskeletal and Skin Diseases at NIH
Physician Status
available for consultation
Primary Disease Area of Focus
Graft Versus Host Disease (GVHD)
About
Edward W. Cowen, M.D., M.H.Sc., leads the NIH Dermatology Consultation Service, conducts independent and collaborative research, and oversees the continuing medication education-accredited Dermatology Grand Rounds, Branch Clinical Fellowship and resident education programs. He is an internationally recognized expert in cutaneous graft-versus-host disease and serves as Director on the American Board of Dermatology as well as on the Editorial Board of JAMA Dermatology. Dr. Cowen’s primary interests include chronic graft-versus-host disease (GVHD), primary immunodeficiency, autoinflammatory skin

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