living with disease
Pediatric Parent Panel Discussion
Topic(s)
Pediatric Bone Marrow Failure Diseases
This webinar features parents and guardians of pediatric patients who have been diagnosed with a bone marrow failure disease like aplastic anemia, MDS or PNH. The panel includes parents and guardians at all stages of their journeys, from diagnosis to treatment to survivorship.
Carefree: Finding Respite
Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
COVID-19
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
In this webinar, Jane Hamilton discusses the benefits of respite care for caregivers. Learn tips and tools to hire a respite worker, how to partner and share the care.
Living with Bone Marrow Failure: Stress Management and Survivorship
Topic(s)
Living Well with Bone Marrow Failure
Presenter(s)
Areej El-Jawahri, MD
Areej El-Jawahri, MD, and Elyse R. Park, PhD teach patients coping strategies and practical tips for easing the stress of living with a bone marrow failure disease. Patients with aplastic anemia, PNH, or MDS benefit from viewing this recorded program.
"Sounds like a Fable" - Kami's Remarkable Journey through Aplastic Anemia
To her recent friends, her time fighting aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enoug
Updates on Aplastic Anemia and PNH from ASH-2021, ASCO-2022, and EHA-2022 Meetings
Topic(s)
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Phil Scheinberg, MD
In this webinar, Dr. Phillip Scheinberg discusses research most relevant to patients reported over the past year on the biology and treatment on Aplastic Anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2021, European Hematology Association…
Living with MDS: A Patient Panel
Topic(s)
Acute Myeloid Leukemia (AML)
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Patient panel discussions are a chance to meet some of the inspiring patients, caregivers and parents who are dealing with a bone marrow failure disease. Panel discussions are a bit different from our regular educational webinars so please plan to participate via the Q & A window…
Ask the MDS Expert
Topic(s)
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Sandrine Niyongere, MD
Dr. Sandrine Niyongere will gives a brief MDS overview and then answer questions from participants. This interactive webinar recorded patients asking questions that are answered directly by a MDS Expert. #MDS #myelodysplasia #bloodcancer
Understanding Integrative, Holistic and Functional Medicine
Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Mikhail Kogan, MD
Dr. Mikhail Kogan, Medical Director of the GW Center for Integrative Medicine, discusses the differences between integrative, holistic and functional medicines and how they can be used to treat patients. The end of the webinar features questions from patients in the audience.
PNH Experts Discuss: What's Next for PNH? Brief session at the 2022 Patient and Family Hybrid Conference
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Ilene Weitz, MD
Satheesh Chonat, MD
These three experts discuss new and upcoming treatments for PNH, or Paroxysmal Nocturnal Hemoglobinuria.