living with disease
Surviving Loss: A Journey from Losing Homeland to Surviving Bone Marrow Failure
Hello this is Sahar, a woman who fled her homeland followed by the failure of her bone marrow within 6 months. I am a daughter, a devoted wife, a mom to two adorable children.
Lisa: Finding the Light
Lisa loved her work.
As a Senior Teacher in the UK, she dedicated herself, her time, and her passion to her job. An average week saw her working 70 hours.
Following a beach holiday in the Canary Islands, she developed a strange rash on the top of her feet. A colleague urged her to go to the doctor.
2024 Chicago Patient and Family Conference
Register now for the 2024 Patient and Family Conference, held in partnership with the University of Chicago.
2024 Seattle Patient and Family Conference
The time is now to save your seat for the 2024 Patient and Family Conference in Seattle!
Plan to attend on June 22, 2024, in Seattle, WA, in partnership with Fred Hutch Cancer Center - Register Here
Conference Location: Fred Hutch Cancer Center Weintraub Building 1100 Fairview Ave N Seattle, WA 98109
Parking: There is parking in front of the Weintraub Building.
2024 Los Angeles Patient and Family Conference
2024 Patient and Family Conference in Los Angeles
Session Recordings:
Transplant for Aplastic Anemia and MDS
PNH Patient Panel
In this webinar, patients diagnosed with PNH discuss their patient journey and share their personal experiences.
Aplastic Anemia Patient Panel
MDS Patient Panel
In this webinar, patients diagnosed with MDS discuss their patient journey and share their personal experiences.
CCUS and MDS - Webinar for Patients
In this webinar, Drs. Kelly Bolton and Eytan Stein discuss CCUS (clonal cytopenia of undetermined significance) and the connection to MDS.