living with disease

Isolated KRAS and NRAS mutations in adults with monocytosis and/or cytopenia(s)

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Abstract NRAS and KRAS mutations, commonly identified alongside ancestral co-mutations, are generally regarded as pathogenic in adults presenting with monocytosis and/or cytopenia(s). However, their significance in isolation is not well defined. We studied a multi-institutional…

Basiliximab in the Prophylaxis of aGVHD for Unrelated Donor Hematopoietic Stem Cell Transplantation in Patients With Thalassemia Major: A Prospective, Multicenter, Open-Label, Randomized Controlled Study

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To the Editor, We present the first prospective, multicenter, randomized controlled trial (RCT) evaluating Basiliximab prophylaxis for acute graft-versus-host disease (GVHD) in thalassemia major (TM) patients undergoing Matched unrelated donor hematopoietic stem-cell…

ASH 2024 Research Summaries (Aplastic Anemia and PNH)

This publication offers summaries of selected abstracts presented at the Annual Meeting of the American Hematology Society held in December 2024. It provides new and updated information about research into the diagnosis…

“My labs didn’t tell the whole story” Jen’s Aplastic Anemia Journey

Jen had a great life. She was married with two children, and she’s just transitioned from teaching to school counseling. At 41, life was busy yet wonderful.

Her symptoms were unusual, but not alarming. The leg pain was new, as was the bruising. Then fatigue set in, far beyond usual tiredness from her schedule. A visit to the doctor did not offer a definitive diagnosis.  They suggested it was her condition with Hashimoto's thyroiditis, but with the new bruising, they ordered labs. It was February 2022.

ASH 2024 Research Summaries (MDS and AML)

This publication offers summaries of selected abstracts presented at the Annual Meeting of the American Hematology Society held in December 2024. It provides new and updated information about research into the diagnosis…

ASH 2025 Updates: Aplastic Anemia and PNH Webinar

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Topic(s)
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Taha Bat, MD
In this webinar, Dr. Taha Bat discusses research most relevant to patients reported over the past year on the biology and treatment for Aplastic Anemia and PNH. The studies were presented at the American Society of Hematology (ASH) 2025 meeting. These findings will be explained…

Student Guide

Supporting students with Bone Marrow Failure Diseases, a guide for parents and school personnel

What is PRCA?

Pure red cell aplasia (PRCA) is a condition in which the bone marrow stops producing red blood cells that are responsible for carrying oxygen

MarrowForums

MarrowForums provides free discussion forums for patients with bone marrow failure diseases

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