living with disease

Exercise Treatment as Part of Multidisciplinary Whole Person Care in Oncology

Original Publication Date
Article Source
External Web Content
Several national agencies, including the American Society of Clinical Oncology (ASCO), recommend the prescription of exercise for patients diagnosed with cancer.1,2 The evidence base for this recommendation is derived from studies that showed exercise-related improvements in…

Learn about PNH (Paroxysmal Nocturnal Hemoglobinuria)

Original Publication Date
Article Source
AAMDSIF Web Content
Recently, there has been increased mention of paroxysmal nocturnal hemoglobinuria (PNH) in the news and on social media. As part of our mission, the Aplastic Anemia and MDS International Foundation (AAMDSIF) works with leading PNH specialists to provide patients, their support…

Fatigue Management

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Topic(s)
Living Well with Bone Marrow Failure
Presenter(s)
Timothy Pearman, PhD
Jenny Finkel
In this webinar, Dr. Tim Pearman discusses fatigue and how it can be best managed. Jenny Finkle demonstrates some gentle exercises you can do to increase your energy level. This was an interactive session.

Post-Transplant Relapse - MDS

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Topic(s)
Bone Marrow Transplant
Myelodysplastic Syndromes (MDS)
In this webinar, Dr. Alejandro Marinos Velarde discusses the risk factors that can cause post transplant relapse along with treatment and management of relapse. He answers questions from the live audience as well.

Safe, Successful Pregnancies Possible After AlloHCT

Original Publication Date
Article Source
External Web Content
Findings refute former consensus that pregnancies post-transplant are nearly impossible, highlight need for increased fertility counseling (WASHINGTON, July 15, 2024) — Despite treatment-related fertility challenges, female patients can become pregnant and give birth to healthy…

2024 EHA-ASCO Research Updates for MDS and AML

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Topic(s)
Myelodysplastic Syndromes (MDS)
Acute Myeloid Leukemia (AML)
Presenter(s)
Abhay Singh, MD, MPH
In this webinar, Dr. Abhay Singh discusses the latest MDS and AML research presented at the 2024 EHA and ASCO meetings. This is an advanced educational presentation.

PNH from the 2024 Philadelphia Patient and Family Conference

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Gloria F. Gerber, MD, explains the diagnosis and treatment of PNH, or Paroxysmal Nocturnal Hemoglobinuria. Watch this session to understand what happens to patients who develop PNH, and the options for treatment of this bone marrow failure disease.
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