eBulletin / eInsider (volunteer vibe)

This year marks the 25^th year I have survived paroxysmal nocturnal hemoglobinuria pa

After a couple of weeks of constant nose bleeds and mouth ulcers, three doctor visits and a bone marrow biopsy bone marrow biopsy: A medical procedure to remove

I was diagnosed with MDS in about 2003 at age 63.  I am now 72 years old and will be married 52 years in June.  I have not taken medication for the last three years.  I go to a wonderful doctor at UCLA who is doing research on MDS.  I feel fine and I am not excessively tired.  My hemoglobin