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acute myeloid leukemia (AML)

2022 March for Marrow California

Welcome to our first in-person March for Marrow LA, since 2019! Our 13th annual March for Marrow will be held at the iconic Shoreline Village, situated along the beautiful Long Beach Marina at 429 Shoreline Village Drive, Long Beach, CA.

Following two years of virtual events, we invite everyone in California to be with us in-person or virtually as we celebrate being together. We hope to connect with patients and families from all parts of the great state of California.

Event Date: 
Sat, 04/30/2022 - 7:00am (EDT)
Community Event Type: 

MDS Virtual Patient Support Group

Event Date: 
Sat, 03/12/2022 - 1:00pm (EST)

This virtual support group is designed to support patients diagnosed with MDS. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants.

Transplant Virtual Support Group

Event Date: 
Wed, 03/16/2022 - 5:30pm (EDT)

This virtual support group is designed to support patients who have undergone transplant or who are considering this as a curative option for

Science Simplified: What is a Natural History Study?

Want to learn about scientific topics without needing a PhD? Check out the Science Simplified blog from TESS Research Foundation! Dr. Tanya Brown, PhD, works with researchers to make science accessible and empower rare disease community members with scientific knowledge. Dr. Brown has over a decade of experience in neurodevelopmental research and is currently the Scientific Director for TESS Research Foundation. Please reach out to her at tanya@tessfoundation.org if you have questions or comments.

Resuscitating a Dying Marrow: Emerging Concepts and Treatment Advances in Myeloid Malignancies

We are excited to announce a complimentary, CME-certified on-demand webcast series Resuscitating a Dying Marrow: Emerging Concepts and Treatment Advances in Myeloid Malignancies.  This enduring material was recorded during the Virtual Friday Satellite Symposium held on December 10th, 2021 preceding the 63rd Annual ASH Meeting and Exposition.

Pediatric Parents Virtual Support Group

Event Date: 
Tue, 03/08/2022 - 7:30pm (EST)

This virtual support group is designed to support pediatric parents whose children have been diagnosed with

2022 March for Marrow Texas

Welcome to our first in-person March for Marrow TX, The Woodlands, since 2019! We have scheduled our 13th Annual March for Marrow at the beautiful Northshore Park, 2505 Lake Woodlands Dr, The Woodlands, TX 77380.

Following two years of virtual events, we are inviting everyone across the state of Texas to be with us in person or virtually as we celebrate being together. We will stand with our arms outstretched from Houston to El Paso and from Amarillo to Brownsville, from east to west, and north to south.

Event Date: 
Sat, 04/02/2022 - 8:00am (EDT)
Community Event Type: 

Clinical Trials and Children

Until recently, children were rarely included in studies of medical treatments. As a result, much is still unknown about how children respond to drugs, some biologics (such as gene therapy) and medical devices. According to the U.S. Food and Drug Administration (FDA), only 20-30% of approved drugs have actually been labeled for use in children.

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