Paroxysmal Nocturnal Hemoglobinuria (PNH)

Managing Treatment Symptoms with Diet

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Topic(s)
Managing Your Treatment
In this webinar, Joanna Myers Casale, RD, CSO, discusses how the foods patients choose can help them cope with side effects, such as loss of appetite, nausea, vomiting, diarrhea, chewing and swallowing difficulties, and taste changes. The recording includes questions from…

Living with Bone Marrow Failure: Stress Management and Survivorship

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Topic(s)
Living Well with Bone Marrow Failure
Presenter(s)
Areej El-Jawahri, MD
Areej El-Jawahri, MD, and Elyse R. Park, PhD teach patients coping strategies and practical tips for easing the stress of living with a bone marrow failure disease. Patients with aplastic anemia, PNH, or MDS benefit from viewing this recorded program.

Updates on Aplastic Anemia and PNH from ASH-2021, ASCO-2022, and EHA-2022 Meetings

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Topic(s)
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Phil Scheinberg, MD
In this webinar, Dr. Phillip Scheinberg discusses research most relevant to patients reported over the past year on the biology and treatment on Aplastic Anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2021, European Hematology Association…

Living Well with Bone Marrow Failure Disease from the 2022 Buffalo Patient and Family Conference

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Topic(s)
Aplastic Anemia
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Related Bone Marrow Failure Diseases and Malignancies
Megan Pailler, PhD, Assistant Professor of Oncology, provides clinical assessment and intervention services to oncology patients on both an inpatient and outpatient basis. Her area of focus has been the hematological services, including leukemia, lymphoma, and bone marrow…

Medicare Made Simple for Patients

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Topic(s)
Living Well with Bone Marrow Failure
Program participants will learn the basics of Medicare including how and when to enroll, the different parts of Medicare, the difference between Advantage and Supplement plans and what original Medicare does not cover, eligibility, how to avoid penalties, when to qualify for…
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