Paroxysmal Nocturnal Hemoglobinuria (PNH)

AAMDSIF Supports the Accelerating Kids' Access to Care Act

Original Publication Date
Article Source
Coalition Action
AAMDSIF Supports the Accelerating Kids' Access to Care Act. On March 26, 2025, AAMDSIF joined with 212 additional patient advocacy and medical center organizations in urging members of the US Congress to pass the Accelerating Kids’ Access to Care Act. Passage of this bill will…

How Our Lungs Back Up the Bone Marrow to Make Our Blood

Original Publication Date
Article Source
External Web Content
A study of human lung samples reveals a potent new source of hematopoietic stem cells, which make red blood cells, platelets and immune cells. By Levi Gadye Red blood cells carry oxygen from the lungs to every other organ, and blood-forming stem cells must make about 200 billion…

2025 AAMDSIF Bone Marrow Failure Summit Paroxysmal Nocturnal Hemoglobinuria Expert Panel

Thumbnail for video Watch Now

Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Regis Peffault de Latour, MD, PhD
Austin Kulasekararaj, MBBS, MD
Morag Griffin, MBChB, FRCPath
Carlos M. De Castro, III, M.D.
Watch PNH experts at the 2025 AAMDSIF Bone Marrow Failure Summit tackle the latest science and research on choosing the optimal complement inhibition strategy in PNH. This session is moderated by Phillip Scheinberg, MD from Hopital A Beneficencia in Sao Paulo, Brazil. Session…

Oppose 57% Cut to Congressionally Directed Medical Research Programs

Original Publication Date
Article Source
Community Impact
Oppose 57% Cut to Congressionally Directed Medical Research Programs Take Action Before House Vote Oppose 57% Cut to Congressionally Directed Medical Research Programs Tell your Members of Congress to Vote NO on The Full-Year Continuing Appropriations and Extensions Act, 2025 As…

Make Your Voice Count!

Join us in endorsing the recent appeal to Congress with the following actions. Your voice is important to continue these services for patients and provide opportunities for researchers to find the cures.

Read the letter to Congress from Research!America, with AAMDSIF and 600 other organizations, here.

Subscribe to Paroxysmal Nocturnal Hemoglobinuria (PNH)

Website Feedback

Please use this feedback form to report website issues only. For other issues concerning patients and families, please email help@aamds.org or use the Patient and Family Helpline here.