paroxysmal nocturnal hemoglobinuria (PNH) | Page 15 | Aplastic Anemia & MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

Young Minnesotan Opens Up About Dual Diagnosis and Emphasizes Emotional Wellness

Person's Name: 
Sarah Nesheim

 

 

My Diagnosis

In the summer of 2014 I noticed ongoing bruising all over my body. At first, I thought it might have to do with my diet (low iron), but soon I noticed a new kind of mark on my skin, almost having a bulls-eye appearance. By end of summer I knew I had to do something about this.

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5th Annual Rare but Real Golf Tournament

Come out for a good time, a little golf, and many opportunities to take home money and prizes and help Breezy raise money for PNH. Over the last four years we have raised over $34,000 and hope to continue this trend! Bring on the sun and the fun!

To donate money toward the event or sign up please contact Brianne Sandborn at (517) 243-2020 or sandbornb@gmail.com.

Event Date: 
Sat, 08/29/2020
Community Event Type: 

2nd Annual Donna Box Memorial Golf Tournament

Join us for the 2nd Annual Donna Box Memorial Golf Tournament!

  • 8:30am Shotgun Start
  • $100 per golfer
  • 18 hole scramble, cart, range balls, continental breakfast and lunch
  • 1st, 2nd, and 3rd place prizes
  • Door prizes
  • Silent Auction
  • 50/50 Raffles

Please email donnaboxmemorial@gmail.com with questions or registration information.
Please register by August 3, 2018.

Event Date: 
Mon, 08/20/2018
Community Event Type: 

2018 March for Marrow Walk Miami

Join us for a morning of fun, remembrance, and awareness at our 3rd annual March for Marrow Walk Miami in memory of Jennifer Zighelboim. This year we move to a new walk location - Historic Virginia Key Beach Park! Festivities include a food truck and live music, as well as a day of fun connecting with fellow patients and families affected by

Event Date: 
Sat, 05/12/2018
Community Event Type: 

Concurrent treatment of aplastic anemia/Paroxysmal Nocturnal Hemoglobinuria syndrome with immunosuppressive therapy and eculizumab: a UK experience

Author(s): 
Griffin M, Kulasekararaj A, Gandhi S, Munir T, Richards S, Arnold L, Benson-Quarm N, Copeland N, Duggins I, Riley K, Hillmen P, Marsh J, Hill A
Primary Author: 
Griffin M
Journal Title: 
Haematologica
Original Publication Date: 
Mar 2018

2018 Tartan Trailblazers March for Marrow Walk Detroit

Join us for a morning of fun, remembrance, and awareness at our 3rd annual March for Marrow walk Detroit. Registration for the walk will begin at the pavilion. The walk will proceed along the scenic paths of the park. Festivities include a Moment of Remembrance, silent auction,

Event Date: 
Sun, 06/03/2018
Community Event Type: