Myelodysplastic Syndromes (MDS)

Clinical Trials and Children

Until recently, children were rarely included in studies of medical treatments. As a result, much is still unknown about how children respond to drugs, some biologics (such as gene therapy) and medical devices. According to the U.S. Food and Drug Administration (FDA), only 20-30% of approved drugs have actually been labeled for use in children.

Enfield (CT) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDS. This group meets on the first Thursday of every month from 6:00 to 7:30pm. Registration is required to receive the login information for the group. To register, please email - survivorshipprogram@gmail.com
This group is facilitated by Kara Sawyer, RN, BSN, and Jay Burton, DO.

Colorado Springs (CO) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDS. This group meets on the third Tuesday of every month from 6:00 to 7:30pm. Registration is required to receive the login information for the group. Use this link to register,
https://www.llsform.org/ho0999SER/form210/index.html
If you have any questions, please contact - Bonnie Andrews, RN, at (303) 873-5963 or kcbsn9757@gmail.com

San Diego (CA) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDS. This group meets on the last Tuesday of every month from 6:00 to 8:00pm. Registration is required to receive the login information for the group. Use this link to register,
https://www.llsform.org/ho0999SER/SDG1FSG/index.html

Marin (CA) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDS. This group meets on the second Tuesday of every month from 7:00 to 8:30pm. Registration is required to receive the login information for the group. Use this link to register,
https://www.llsform.org/ho0999SER/GBR1FSG/index.html

Palo Alto (CA) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDS. This virtual group meets on the second Tuesday of every month from 3:30 to 5:00pm. Registration is required for you to receive the login information for the group. Use this link to register,
https://www.llsform.org/ho0999SER/PAT1FSG/index.html
If you have any questions about the group, please contact - Elizabeth Kerr, MSW, at (650) 308-6274

Berkeley/Oakland (CA) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDS. This virtual group meets on the first Monday of every month from 7:30 to 9:00pm. Registration is required for you to receive the login information for the group. Use this link to register,
https://www.llsform.org/ho0999SER/BRK1FSG/index.html
If you have any questions about the group, please contact - Gail Splaver, LCSW, at (510) 527-3871, or Nancee Hirano, RN, MS, ANP, at (510) 823-7286

Roseville (CA) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDS. This virtual group meets on the first Wednesday of every month from 5:30 to 7:30pm. Registration is required for you to receive the login information for the group. Use this link to register,
https://www.llsform.org/ho0999SER/RSV1FSG/index.html
This group is facilitated by Dulcy Wilson, RN, MSN.

Sacramento (CA) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDS. This virtual group meets on the first Wednesday of every month from 6:30 to 8:00pm. Registration is required for you to receive the login information for the group. Use this link to register,
https://www.llsform.org/ho0999SER/SCM1FSG/index.html
This group is facilitated by Elsa Hatch, RN.

Phoenix (AZ) LLS Virtual Blood Cancer Support Group

We are pleased to let patients and families know about the LLS blood cancer support group opportunities around the country. These support groups are facilitated by LLS, not AAMDSIF. This virtual group meets on the second Tuesday of each month from 5:30 to 7:00pm. Registration is required for you to receive the login information for the group. Use this link to register,
https://www.llsform.org/ho0999SER/AZ1FSG/index.html
If you have any questions about the group, please contact - Jessica Wells, LCSW, at jessica.wells@ironwoodcrc.com.

Website Feedback

Please use this feedback form to report website issues only. For other issues concerning patients and families, please email help@aamds.org or use the Patient and Family Helpline here.