myelodysplastic syndromes (MDS) | Page 2 | Aplastic Anemia and MDS International Foundation

myelodysplastic syndromes (MDS)

A systematic review of patient reported outcomes in phase II or III clinical trials of myelodysplastic syndromes and acute myeloid leukemia

Author(s): 
Bryant AL, Drier SW, Lee S, Bennett AV
Primary Author: 
Bryant AL
Journal Title: 
Leuk Res
Original Publication Date: 
Jun 2018

The purpose of this systematic literature review was to identify clinical trials of MDS and AML that included patient-reported outcome (PRO) instruments, and to summarize the symptom and other health related quality of life (HRQOL) concepts most frequently assessed and the PRO instruments that were used. Sixteen manuscripts describing 14 distinct trials met all criteria (i.e., phase 2 or 3

Bone Marrow Diseases: 

Transfusion-free interval is associated with improved survival in patients with higher-risk myelodysplastic syndromes engaged in routine care

Author(s): 
Bell JA, Galaznik A, Blazer M, Farrelly E, Ogbonnaya A, Raju A, Eaddy M, Fram RJ, Faller DV
Primary Author: 
Bell JA
Journal Title: 
Leuk Lymphoma
Original Publication Date: 
Jun 2018

Most higher-risk myelodysplastic syndrome (HR-MDS) patients will become transfusion-dependent, leading to potential complications, including infections or end-organ dysfunction. Data correlating achievement of transfusion-free intervals (TFIs) during first-line therapy (1LT) with survival are sparse. We evaluated HR-MDS patients receiving 1LT diagnosed from 1/1/2008 to 7/31/2015 and the impact of a TFI (≥60-day interval without transfusions) on progression-free and overall survival (PFS, OS) using Cox proportional-hazard models.

Bone Marrow Diseases: 

Clinical Outcomes With Ring Sideroblasts and SF3B1 Mutations in Myelodysplastic Syndromes: MDS Clinical Research Consortium Analysis

Author(s): 
Migdady Y, Barnard J, Al Ali N, Steensma DP, DeZern A, Roboz G, Garcia-Manero G, Sekeres MA, Komrokji RS
Primary Author: 
Migdady Y
Journal Title: 
Clin Lymphoma Myeloma Leuk
Original Publication Date: 
May 2018

ACKGROUND:

Bone Marrow Diseases: 

2nd Annual Donna Box Memorial Golf Tournament

Join us for the 2nd Annual Donna Box Memorial Golf Tournament!

  • 8:30am Shotgun Start
  • $100 per golfer
  • 18 hole scramble, cart, range balls, continental breakfast and lunch
  • 1st, 2nd, and 3rd place prizes
  • Door prizes
  • Silent Auction
  • 50/50 Raffles

Please email donnaboxmemorial@gmail.com with questions or registration information.
Please register by August 3, 2018.

Event Date: 
Mon, 08/20/2018 - 8:30am
Community Event Type: 

NJ MDS Support Group

The NJ MDS Support Group will hold its next meeting on Wednesday, December 19, 2018 from 7-8:30PM pm at the RWJ Somerset Steeplechase Cancer Center in the lower level conference room. The group provides opportunities for patients and families to exchange thoughts and ideas on living with MDS.   Come meet other MDS patients and families who are going through the same thing as you.  
Event Date: 
Wed, 12/19/2018 -
7:00pm to 8:30pm
Bone Marrow Diseases: 
Community Event Type: 

NJ MDS Support Group

The NJ MDS Support Group will hold its next meeting on Wednesday, November 21, 2018 from 7-8:30PM pm at the RWJ Somerset Steeplechase Cancer Center in the lower level conference room. The group provides opportunities for patients and families to exchange thoughts and ideas on living with MDS.   Come meet other MDS patients and families who are going through the same thing as you.  
Event Date: 
Wed, 11/21/2018 -
7:00pm to 8:30pm
Bone Marrow Diseases: 
Community Event Type: 

NJ MDS Support Group

The NJ MDS Support Group will hold its next meeting on Wednesday, October 17, 2018 from 7-8:30PM pm at the RWJ Somerset Steeplechase Cancer Center in the lower level conference room. The group provides opportunities for patients and families to exchange thoughts and ideas on living with MDS.   Come meet other MDS patients and families who are going through the same thing as you.  
Event Date: 
Wed, 10/17/2018 -
7:00pm to 8:30pm
Bone Marrow Diseases: 
Community Event Type: 

NJ MDS Support Group

The NJ MDS Support Group will hold its next meeting on Wednesday, September 26 2018 from 7-8:30PM pm at the RWJ Somerset Steeplechase Cancer Center in the lower level conference room. The group provides opportunities for patients and families to exchange thoughts and ideas on living with MDS.   Come meet other MDS patients and families who are going through the same thing as you.  
Event Date: 
Wed, 09/26/2018 -
7:00pm to 8:30pm
Bone Marrow Diseases: 
Community Event Type: 

NJ MDS Support Group

The NJ MDS Support Group will hold its next meeting on Wednesday, August 15, 2018 from 7-8:30PM pm at the RWJ Somerset Steeplechase Cancer Center in the lower level conference room. The group provides opportunities for patients and families to exchange thoughts and ideas on living with MDS.   Come meet other MDS patients and families who are going through the same thing as you.  
Event Date: 
Wed, 08/15/2018 -
7:00pm to 8:30pm
Bone Marrow Diseases: 
Community Event Type: