Blood Clot Treatment
Blood clots are very dangerous. If you have a blood clot, you need to get help right away. Patients with PNH are at an increased risk of getting serious blood clots.
pediatric patient / parent
2024 Philiadelphia, PA, Patient and Family Conference
The conference was held over two days - Friday, July 19 from 2-7 PM ET and Saturday, July 20 from 8AM - 4 PM ET.
Watch these recordings from conference sessions:
Event Date:
Fri, 07/19/2024 - 2:00pm (EDT) to Sat, 07/20/2024 - 4:00pm (EDT)
Bone Marrow Disease(s):
Conference Event Type:
Patient and Family Conferences
Caregivers - Take Care but HOW????
In this webinar, Jane Hamilton discusses how and why it is important for caregivers to practice self care. The entire interactive session was recorded.
Advances in Treating Pediatric Aplastic Anemia
Susan Kirk, MSPAS, PA-C
Kirk, Susan
Assistant Professor, Department of Pediatrics, Section of Hematology-Oncology
University of Virginia School of Medicine
Evan's Life is Turned Upside Down by Diagnosis of PNH
Evan biked daily. He had no symptoms. The diagnosis was fast, but surprising. Evan shares his remarkable story in this episode.
Extravascular Hemolysis and PNH
Dr. Taha Bat explains extravascular hemolysis, focusing on PNH (