"You CAN beat this!" Jody Encourages other Parents with his Daughter's Story of Aplastic Anemia
Before AnnaLeigh got sick, she was a happy, energetic and healthy 4 year old with a huge imagination.
patient
Science Simplified: What is a Natural History Study?
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Want to learn about scientific topics without needing a PhD? Check out the Science Simplified blog from TESS Research Foundation! Dr. Tanya Brown, PhD, works with researchers to make science accessible and empower rare disease community members with scientific knowledge. Dr…
Machine learning assisted real-time deformability cytometry of CD34+ cells allows to identify patients with myelodysplastic syndromes
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Abstract Diagnosis of myelodysplastic syndrome (MDS) mainly relies on a manual assessment of the peripheral blood and bone marrow cell morphology. The WHO guidelines suggest a visual screening of 200 to 500 cells which inevitably turns the assessor blind to rare cell populations…
Surfer grounded by PNH Treatment but Thriving!
I was diagnosed with PNH fifteen years ago, at the age of 51. This is my story.
I grew up on the West Side of Los Angeles. Raised by a single parent, my mother was a strong woman of faith. My father, the eldest of twelve, died of a heart attack when I was about nine months old. Four of his six brothers, and a couple of my cousins died at an early age. My mother always said, “those Harness men have bad blood.” Little did I know what she meant at the time.
Dr. Naveen Pemmaraju
Institution
University of Texas MD Anderson Cancer Center
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Myeloproliferative Neoplasms (MPN)
Fighting for a Transplant : Stefania conquers Aplastic Anemia and PNH ~ Stefania demuestra su VERDADERA fuerza
Hi! My name is Stefania, I am 31 years old, and I am from Ecuador.
Transplant for Older Patients with MDS
Topic(s)
Bone Marrow Transplant
Presenter(s)
Linda Burns, MD
Nandita Khera, MD, MPH
In this webinar Drs. Linda Burns and Nandita Khera will discuss the advances in transplantation for older patients with MDS. Stem cell transplants are not frequently offered to older patients with high-risk myelodysplastic syndromes (MDS). According to a study from the Blood and…
Nandita Khera, MD, MPH
Institution
Mayo Clinic College of Medicine and Science
Physician Status
available for consultation
Primary Disease Area of Focus
Myelodysplastic Syndromes (MDS)
Linda Burns, MD
Institution
Center for International Blood & Marrow Transplant Research (CIBMTR)
Physician Status
available for consultation
Primary Disease Area of Focus
Myelodysplastic Syndromes (MDS)
Clonal Evolution in Aplastic Anemia
Topic(s)
Aplastic Anemia
Presenter(s)
Emma Groarke, MD, FRCPath
In this webinar, Dr. Emma Groarke will discuss what is clonal evolution and potential impact for patients with aplastic anemia. She will answer questions from participants at the end of the presentation.