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2014 Matthew Debono Scholarship Winner Annette Lysan

Person's Name: 
Annette Lysan

In March, Annette had the honor of singing a solo for her high school senior show. She chose to sing “I Was Here”, a song recorded by the group Lady Antebellum and others. The lyrics for the chorus start with “I wanna do something that matters – say something different – something that sets the whole world on its ear – I wanna do something better with the time I’ve been given.” She considers it her personal anthem.

Bone Marrow Disease(s): 
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Solving a Diagnostic Mystery

Person's Name: 
Emma's Story, Part 1

In January 2016, my 9 year-old daughter Emma turned yellow. After seeing her regular doctor, we were sent straight to the hospital. They found that her liver enzymes were extremely elevated and sent us to a second hospital. After extensive blood panels and scans, they still couldn’t determine the cause of Emma’s liver inflammation, and so the process to find her a new liver began.

Bone Marrow Disease(s): 
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eBulletin / eInsider (story of hope)

An Unusual Route to Diagnosis

Person's Name: 
Jane Massey

Although it sounds strange, I am beginning to believe that breast cancer possibly has saved my life. In October 2015, I was diagnosed with stage 2 lobular carcinoma of the breast. My cancer was found during my routine mammogram. I opted for a bi-lateral mastectomy and then had 33 radiation treatments in early 2016.  I saw my oncologist every month due to my treatment and she ran blood work every time.

Bone Marrow Disease(s): 
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I'm Like You: Anna Sobon

Person's Name: 
Anna Sobon

19-year-old Anna Sobon had been a typical college sophomore, active and full of plans about making her dreams come true.
When she began to get increasingly tired, she  thought it was due to her hectic schedule or maybe some lingering after-effects of her bout with mononucleosis the previous summer. Even as her strength was dwindling, Anna stayed determined to keep up with her daily routines while she waited for her symptoms to simply go away.

Bone Marrow Disease(s): 
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SAA Patient Contributes to NIH Research

Person's Name: 
Dominique Hughes

I was 19 years old when I found out that I had low blood counts. At this time I was just starting college and also working three different jobs. I was having extreme stomach pains and abnormal periods. I went and saw my gynecologist and routine tests showed my low blood counts.

Bone Marrow Disease(s): 
Content source: 
eBulletin / eInsider (story of hope)

Doing His Part to Assist MDS Research

Person's Name: 
Tom Coccagna

The first indication that something was wrong came with a routine blood test. Lots of H's (high) and L's (low) dotted my CBC (complete blood count). My primary care provider said it probably was ‘nothing’, but I might want to follow up with a hematologist just to be sure.

Bone Marrow Disease(s): 
Content source: 
eBulletin / eInsider (story of hope)