patient

Instructions

Not all healthcare professionals or emergency responders will understand your rare diagnosis and unique needs. AAMDSIF has created an emergency health information card that communicates to others what they need to know…

ASH 2021 MDS and AML - for Patients

This publication offers summaries of selected abstracts presented at the December 2021 Meeting of the American Hematology Society. It provides new and updated information about new research into the diagnosis, treatment…

ASH 2022 MDS and AML - Booklet

This publication offers summaries of selected abstracts presented at the Annual Meeting of the American Hematology Society held in December 2022. It provides new and updated information about research into the diagnosis…

ASH 2022 Aplastic Anemia and PNH - Booklet

This publication offers summaries of selected abstracts presented at the Annual Meeting of the American Hematology Society held in December 2022. It provides new and updated information about research into the diagnosis…

EMPAVELI Fact Sheet

What is EMPAVELI®? EMPAVELI® (previously known as pegcetacoplan) is the first PNH treatment that binds to complement protein C3. It is approved by the Food and Drug Administration for adult patients with paroxysmal…

Blood and Bone Marrow Basics

A patient's guide to understanding blood and bone marrow. Blood is a "circulating organ" of the body. It is composed of many different types of cells that are carried through the body in plasma. The blood helps to…

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