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Here's where you'll find a regularly updated, broad range of articles written by the AAMDSIF team, allied health organizations and news organizations. By staying well-informed, patients and families are practicing a form of self-support that will help them be more effective self-advocates when engaging with health care providers.

Myelodysplastic Syndromes Treatment (PDQ®) Patient Version

Originally Published: 03/28/2019
This PDQ cancer information summary has current information about the treatment of myelodysplastic syndromes. It is meant to inform and help patients, families, and caregivers. It does not give formal guidelines or recommendations for making decisions about health care. Editorial Boards write the PDQ cancer information summaries and keep them up to date. These Boards are made up of experts in cancer treatment and other specialties related to cancer. The summaries are reviewed regularly and changes are made when there is new information. The date on each summary ("Date Last Modified") is the...

Foundation Update Newsletter March 2019

Originally Published: 03/11/2019

Treatment Options Improve for Older Patients With AML

Originally Published: 03/03/2019
More options are available than ever before for treating older patients with acute myeloid leukemia (AML) and fresh hopes are resting on combinations of venetoclax (Venclexta) plus hypomethylating agents, said Richard M. Stone, MD, at the 23rd Annual International Congress on Hematologic Malignancies®.1

Foundation Update Newsletter February 2019

Originally Published: 02/12/2019

February 2019 Newsletter: Foundation Update

Originally Published: 02/08/2019
Articles include: AAMDSIF Launches New and Improved Website for You! We Want to Hear from You: Patient Survey AAMDSIF Patient & Family Conference in Albuquerque NM Facts for Life 2019 Webinars Begin! and more! bone marrow failure disease, MDS, AML, aplastic anemia, CML, CMML, PRCA Myelodysplasia

MDS Update Winter 2019

Originally Published: 02/05/2019

Foundation Update Newsletter January 2019

Originally Published: 01/11/2019

Coping with Caregiver PTSD

Originally Published: 01/10/2019
Coming down from taking care of someone with cancer is like an addict going cold turkey. Every day I took care of Dan, we followed the same unbearable routine; the last weeks were especially traumatic for me. It's been three years since his death, and I think I am slowly emerging from PTSD. It has been difficult to assimilate back into society. I feel that only a few select people understand what I experienced as a caregiver not only for my husband of 25 years, but also for our son who has autism.

Foundation Update Newsletter December 2018

Originally Published: 12/15/2018

MDS Update, October 2018

Originally Published: 12/12/2018
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