Newsstand | Page 11 | Aplastic Anemia & MDS International Foundation


Here's where you'll find a regularly updated, broad range of articles written by the AAMDSIF team, allied health organizations and news organizations. By staying well-informed, patients and families are practicing a form of self-support that will help them be more effective self-advocates when engaging with health care providers.

2018 AAMDSIF Scientific Symposium Patient Summary

Originally Published: 06/06/2018
The AAMDSIF 2018 Scientific Symposium Patient Summary is now available in print format. Containing 30 lay language summaries of presentations from a panel of international experts, this 28-page publication presents the latest  in bone marrow failure research. Order your copy by contacting Supply is limited

New hope for people with AML – an interview with Kathleen Weis, CEO of the Aplastic Anemia and MDS International Foundation

Originally Published: 06/06/2018
Don’t give up hope, because the chances of finding a cure for acute myeloid leukemia (AML) are improving every day. That’s the message from Kathleen Weis, CEO of the Aplastic Anemia and MDS International Foundation (AAMDSIF), to those living with this rare blood and bone marrow cancer, following this year’s AML World Awareness Day.

Early, Attenuated-Dose Hypomethylating Agent Therapy May Be Effective in Low-Risk MDS

Originally Published: 05/31/2018
Attenuated doses of hypomethylating agents (HMA) early in treatment could improve outcomes among transfusion independent patients with lower-risk myelodysplastic syndromes (MDS), according to findings that will be presented at the American Society of Clinical Oncology 2018 Annual Meeting in Chicago, Illinois.1

Emergency Supply List

Originally Published: 05/30/2018
Handy list to keep for potential evacuations.   From FEMA

10 Tips for Managing Cancer-Related Stress and Anxiety

Originally Published: 05/22/2018
Many patients and caregivers deal with the mental and physical effects of stress and anxiety. Common feelings include worry, fear, hopelessness, or feeling overwhelmed or out of control. Physically, you may feel tense or short of breath, suffer from headaches or muscle aches, or experience changes in your sleep and eating habits.

Bedside art therapy benefits blood cancer patients

Originally Published: 04/23/2018
New research suggests a bedside visual art intervention (BVAI) can reduce pain and anxiety in inpatients with hematologic malignancies, including those undergoing transplant.

Dynamics of DNMT3A mutation and prognostic relevance in patients with primary myelodysplastic syndrome

Originally Published: 04/02/2018
Background DNMT3A gene mutation has been associated with poor prognosis in acute myeloid leukemia, but its clinical implications in myelodysplastic syndrome (MDS) and dynamic changes during disease progression remain controversial.   

Minimal Residual Disease May Predict AML Relapse, Death

Originally Published: 03/29/2018
Targeted sequencing-based detection of molecular minimal residual disease during complete remission was associated with an increased risk of relapse or death in patients with acute myeloid leukemia (AML), according to Dutch researchers.

New Options for Acute Myeloid Leukemia

Originally Published: 03/29/2018
Four new treatments for patients with acute myeloid leukemia (AML) were approved in 2017, including some first-in-class drugs with novel mechanisms of action, which offer better outcomes for select patients.

The Science of Eating Well: MSK Research Focuses on Nutrition after a Stem Cell Transplant

Originally Published: 03/29/2018
MSK researchers have shown the crucial role that a healthy diet plays in cancer recovery. They are now developing unique ways to help people who are having transplants maintain good nutrition.