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Downloadable pages about disease basics, PNH risk level, treatment options, side effect management and communicating with your health care team. To learn more, see our PNH Toolkit page.
Learn how to build a strong healthcare team
Tips for improving medication adherence
Use the AAMDS Map of Specialists to find a PNH expert
Guidelines and suggested questions for making the most of your health care appointments
Summary of the common side effects of PNH treatments and tips for managing them
PNH patients need to take a few special precautions
Learn more about how to find a clinical trial
Review of the range of PNH symptoms based on low blood counts
Basic description of PNH and how it affects your bone marrow and blood
Summary of FDA-approved medicines for treating PNH and transplantation options.
