Most patients and families want to learn about recent advances in clinical research, particularly research leading to better treatments and outcomes. We offer the following resources to help you keep up to date on current research:
- Personalized support from Patient Educators by emailing help@aamds.org or calling (800) 747-2820
- Latest Research section on our website with recent articles from major hematology/oncology journals
- Online courses where you can learn from our webinars, webcasts, interviews with experts and interactive learning modules
- Clinical trials Clinical trials: Clinical research is at the heart of all medical advances, identifying new ways to prevent, detect or treat disease. If you have a bone marrow failure disease, you may want to consider taking part in a clinical trial, also called a research study. Understanding Clinical Trials Clinical… page that describes how new treatments are develop and how to find clinical treatment options for your disease
- Print and electronic publications that keep you informed with research news
- Patient and Family Conferences connecting you experts and a caring community
Periodically ask your hematologist hematologist: (hee-muh-TOL-uh-jist) A doctor who specializes in treating blood diseases and disorders of blood producing organs. or oncologist oncologist: (on-KAH-luh-jist) A doctor who specializes in the treatment and prevention of cancer. , as well as other members of your health care team, about the latest clinical research clinical research: A type of research that involves individual persons or a group of people. There are three types of clinical research. Patient-oriented research includes clinical trials which test how a drug, medical device, or treatment approach works in people. Epidemiology or behavioral studies look at the… findings. They will be able to tell you how new research may or may not apply to your current medical management. Your hematologist or oncologist is often the best source for advances related to your care.